When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority

Kyle B. Brothers, Ingrid A. Holm, Janet E. Childerhose, Armand H M Antommaria, Barbara A. Bernhardt, Ellen Wright Clayton, Bruce D. Gelb, Steven Joffe, John A. Lynch, Jennifer B. McCormick, Laurence B. McCullough, D. Williams Parsons, Agnes S. Sundaresan, Wendy A. Wolf, Joon Ho Yu, Benjamin S. Wilfond, Benjamin E. Berkman, Leslie G. Biesecker, Sara C. Hull, Sawona BiswasWendy K. Chung, Barbara Koenig, Lisa S. Lehmann, Michelle Lewis, Amy L. McGuire, Melody J. Slashinski, Lainie F. Ross, Joseph S. Salama, Debra Skinner, Holly K. Tabor, Susan M. Wolf, Cassandra Perry, Ariel Chandler, Beth Cobb, John Harley, Melanie Myers, Rosetta Chiavacci, John Connolly, Andy Faucett, Samantha Fetterolf, David Ledbetter, Janet Williams, Kelly Ehrlich, Malia Fullerton, Kelly Hansen, Andrea Hartzler, Aaron Scrol, Lucy Carruth, Elizabeth Chau, Chris Chute, Iftikhar Kullo, Richard Sharp, Murray Brilliant, Norm Frost, Terrie Kitchner, Cathy McCarty, Kadija Ferryman, Carol Horowitz, Yolanda Keppel, Rosamond Rhodes, Saskia Sanderson, Randi Zinberg, Sharon Aufox, Michael Heathcote, Vivian Pan, Maureen Smith, Nanibaa' Garrison, Melissa Basford, Jacqueline Kirby, Mollie Bodin Claar, Lauren Melancon, Sarah Stallings

Research output: Contribution to journalComment/debatepeer-review

9 Scopus citations
Original languageEnglish (US)
Pages (from-to)226-231.e1
JournalJournal of Pediatrics
Volume168
DOIs
StatePublished - Jan 1 2016

Bibliographical note

Funding Information:
The authors would like to thank the coordinating centers of the CSER Consortium (University of Washington) and eMERGE Network (Vanderbilt University) for their support. We would like to thank Joseph Salama (University of Washington) and Mollie Bodin Claar (Vanderbilt University) who provided substantive support for this effort. Jean McEwen, JD, PhD, Joy Boyer, Nicole Lockhart, PhD, and Lucia Hindorff, PhD, MPH, all with the National Human Genome Research Institute (NHGRI), provided program staff support for this project.

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