TY - JOUR
T1 - “We Moved Her Too Soon”
T2 - Navigating Guilt Among Adult Child and Spousal Caregivers of Persons Living With Dementia Following a Move Into Residential Long-Term Care
AU - Statz, Tamara L
AU - Peterson, Colleen M.
AU - Birkeland, Robyn W
AU - McCarron, Hayley
AU - Finlay, Jessica M.
AU - Rosebush, Christina E.
AU - Baker, Zachary
AU - Gaugler, Joseph E.
N1 - Publisher Copyright:
© 2022 American Psychological Association
PY - 2021/5/13
Y1 - 2021/5/13
N2 - Guilt is a complex and multifaceted emotion navigated by many family caregivers (CG). Guilt is sometimes experienced following a transition into a residential long-term care (RLTC) facility, even when the move is necessary given high care needs related to Alzheimer’s disease and related dementias. This mixed-methods study identifies and compares areas of guilt most frequently experienced by spouse and adult child caregivers (N = 83) of a family member with dementia following transition into RLTC. Nearly half of caregivers reported experiencing guilt from their care recipient (CR), other family members, or facility staff. Quantitative analyses explored variables that predict heightened feelings of guilt, and qualitative thematic analyses provided rich insight into subjective experiences of guilt. Person-specific and situational characteristics influenced caregiver guilt, including level of involvement in care, frequency and quality of visits, and perceptions of the RLTC facility. We identify specific opportunities for tailored couple and family psychology interventions, including communication strategies, decision-making approaches, focusing on positives, psychoeducation, self-forgiveness exercises, stress management and self-care activities, and validation. The current work informs how counseling interventions can provide practical support by highlighting specific clinical mechanisms that help to alleviate common facets of caregiver guilt following a transition into RLTC. Critically, we distinguish variation between spouses and adult children to design treatment plans that best support clients who are caring for a person living with dementia in RLTC.
AB - Guilt is a complex and multifaceted emotion navigated by many family caregivers (CG). Guilt is sometimes experienced following a transition into a residential long-term care (RLTC) facility, even when the move is necessary given high care needs related to Alzheimer’s disease and related dementias. This mixed-methods study identifies and compares areas of guilt most frequently experienced by spouse and adult child caregivers (N = 83) of a family member with dementia following transition into RLTC. Nearly half of caregivers reported experiencing guilt from their care recipient (CR), other family members, or facility staff. Quantitative analyses explored variables that predict heightened feelings of guilt, and qualitative thematic analyses provided rich insight into subjective experiences of guilt. Person-specific and situational characteristics influenced caregiver guilt, including level of involvement in care, frequency and quality of visits, and perceptions of the RLTC facility. We identify specific opportunities for tailored couple and family psychology interventions, including communication strategies, decision-making approaches, focusing on positives, psychoeducation, self-forgiveness exercises, stress management and self-care activities, and validation. The current work informs how counseling interventions can provide practical support by highlighting specific clinical mechanisms that help to alleviate common facets of caregiver guilt following a transition into RLTC. Critically, we distinguish variation between spouses and adult children to design treatment plans that best support clients who are caring for a person living with dementia in RLTC.
KW - Adult child
KW - Alzheimer’s disease and alzheimer’s disease-related dementias
KW - Caregiving
KW - Guilt
KW - Spouse
UR - http://www.scopus.com/inward/record.url?scp=85107873019&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85107873019&partnerID=8YFLogxK
U2 - 10.1037/cfp0000150
DO - 10.1037/cfp0000150
M3 - Article
AN - SCOPUS:85107873019
SN - 2160-4096
VL - 11
SP - 300
EP - 314
JO - Couple and Family Psychology: Research and Practice
JF - Couple and Family Psychology: Research and Practice
IS - 4
ER -