TY - JOUR
T1 - The PhenX Toolkit
T2 - standard measurement resources for cancer outcomes and survivorship research
AU - Nekhlyudov, Larissa
AU - Bellizzi, Keith
AU - Galligan, Andrew
AU - King-Kallimanis, Bellinda
AU - Mayer, Deborah K.
AU - Miaskowski, Christine
AU - Salz, Talya
AU - McCarty, Catherine
AU - Cox, Lisa
AU - Hill, Christine
AU - Hendershot, Tabitha P.
AU - Maiese, Deborah R.
AU - Hamilton, Carol M.
N1 - Publisher Copyright:
© The Author(s) 2023. Published by Oxford University Press.
PY - 2023/4/11
Y1 - 2023/4/11
N2 - This brief report introduces the Cancer Outcomes and Survivorship domain in the PhenX Toolkit (consensus measures for Phenotypes and eXposures), which includes 15 validated measurement protocols for cancer survivorship research that were recommended for inclusion in this publicly available resource. Developed with input from the scientific community, the domain provides researchers with well-established measurement protocols for evaluating physical and psychological effects, financial toxicity, and patient experiences with cancer care. The PhenX Toolkit, funded by the National Human Genome Research Institute since 2007, is an online resource that provides high-quality standard measurement protocols for a wide range of research areas (eg, smoking cessation, harm reduction and biomarkers, and social determinants of health). Use of the PhenX Cancer Survivorship Outcomes and Survivorship domain can simplify the selection of measurement protocols, data sharing, and comparisons across studies investigating the cancer survivorship experience.
AB - This brief report introduces the Cancer Outcomes and Survivorship domain in the PhenX Toolkit (consensus measures for Phenotypes and eXposures), which includes 15 validated measurement protocols for cancer survivorship research that were recommended for inclusion in this publicly available resource. Developed with input from the scientific community, the domain provides researchers with well-established measurement protocols for evaluating physical and psychological effects, financial toxicity, and patient experiences with cancer care. The PhenX Toolkit, funded by the National Human Genome Research Institute since 2007, is an online resource that provides high-quality standard measurement protocols for a wide range of research areas (eg, smoking cessation, harm reduction and biomarkers, and social determinants of health). Use of the PhenX Cancer Survivorship Outcomes and Survivorship domain can simplify the selection of measurement protocols, data sharing, and comparisons across studies investigating the cancer survivorship experience.
UR - http://www.scopus.com/inward/record.url?scp=85152165302&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85152165302&partnerID=8YFLogxK
U2 - 10.1093/jnci/djad010
DO - 10.1093/jnci/djad010
M3 - Article
C2 - 36661316
AN - SCOPUS:85152165302
SN - 0027-8874
VL - 115
SP - 473
EP - 476
JO - Journal of the National Cancer Institute
JF - Journal of the National Cancer Institute
IS - 4
ER -
