The limits of traditional approaches to informed consent for genomic medicine

Thomas May; Kaija L. Zusevics; Arthur Derse; Kimberly A. Strong; Jessica Jeruzal; Alison La Pean Kirschner; Michael H. Farrell; Ryan Spellecy

doi:10.1007/s10730-014-9247-3

The limits of traditional approaches to informed consent for genomic medicine

Thomas May, Kaija L. Zusevics, Arthur Derse, Kimberly A. Strong, Jessica Jeruzal, Alison La Pean Kirschner, Michael H. Farrell, Ryan Spellecy

Research output: Contribution to journal › Article › peer-review

7 Scopus citations

Abstract

This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.

Original language	English (US)
Pages (from-to)	185-202
Number of pages	18
Journal	Hec Forum
Volume	26
Issue number	3
DOIs	https://doi.org/10.1007/s10730-014-9247-3
State	Published - Jan 1 2014
Externally published	Yes

Keywords

Autonomy
Community engagement
Genomic medicine
Informed consent

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AU - Strong, Kimberly A.

AU - Jeruzal, Jessica

AU - La Pean Kirschner, Alison

AU - Farrell, Michael H.

AU - Spellecy, Ryan

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AB - This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.

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KW - Genomic medicine

KW - Informed consent

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