The limits of traditional approaches to informed consent for genomic medicine

Thomas May, Kaija L. Zusevics, Arthur Derse, Kimberly A. Strong, Jessica Jeruzal, Alison La Pean Kirschner, Michael H. Farrell, Ryan Spellecy

Research output: Contribution to journalArticlepeer-review

7 Scopus citations

Abstract

This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.

Original languageEnglish (US)
Pages (from-to)185-202
Number of pages18
JournalHec Forum
Volume26
Issue number3
DOIs
StatePublished - Jan 1 2014
Externally publishedYes

Keywords

  • Autonomy
  • Community engagement
  • Genomic medicine
  • Informed consent

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