The limits of traditional approaches to informed consent for genomic medicine

Thomas May; Kaija L. Zusevics; Arthur Derse; Kimberly A. Strong; Jessica Jeruzal; Alison La Pean Kirschner; Michael H. Farrell; Ryan Spellecy

doi:10.1007/s10730-014-9247-3

The limits of traditional approaches to informed consent for genomic medicine

Thomas May, Kaija L. Zusevics, Arthur Derse, Kimberly A. Strong, Jessica Jeruzal, Alison La Pean Kirschner, Michael H. Farrell, Ryan Spellecy

Research output: Contribution to journal › Article › peer-review

10 Scopus citations

Abstract

This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.

Original language	English (US)
Pages (from-to)	185-202
Number of pages	18
Journal	Hec Forum
Volume	26
Issue number	3
DOIs	https://doi.org/10.1007/s10730-014-9247-3
State	Published - Sep 2014
Externally published	Yes

Bibliographical note

Funding Information:
Acknowledgments Work on this paper was supported by the Program in Genomics and Ethics at the Medical College of Wisconsin. The Program in Genomics and Ethics is funded by the Advancing a Healthier Wisconsin Research and Education Program Fund, a component of the Advancing a Healthier Wisconsin endowment at the Medical College of Wisconsin.

Keywords

Autonomy
Community engagement
Genomic medicine
Informed consent

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Publisher link

10.1007/s10730-014-9247-3

Find It

Find It at U of M Libraries

Cite this

@article{292e16d80bd74f9d9604de9fbf23ba58,

title = "The limits of traditional approaches to informed consent for genomic medicine",

abstract = "This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.",

keywords = "Autonomy, Community engagement, Genomic medicine, Informed consent",

author = "Thomas May and Zusevics, {Kaija L.} and Arthur Derse and Strong, {Kimberly A.} and Jessica Jeruzal and {La Pean Kirschner}, Alison and Farrell, {Michael H.} and Ryan Spellecy",

note = "Funding Information: Acknowledgments Work on this paper was supported by the Program in Genomics and Ethics at the Medical College of Wisconsin. The Program in Genomics and Ethics is funded by the Advancing a Healthier Wisconsin Research and Education Program Fund, a component of the Advancing a Healthier Wisconsin endowment at the Medical College of Wisconsin.",

year = "2014",

month = sep,

doi = "10.1007/s10730-014-9247-3",

language = "English (US)",

volume = "26",

pages = "185--202",

journal = "Hec Forum",

issn = "0956-2737",

publisher = "Springer Netherlands",

number = "3",

}

TY - JOUR

T1 - The limits of traditional approaches to informed consent for genomic medicine

AU - May, Thomas

AU - Zusevics, Kaija L.

AU - Derse, Arthur

AU - Strong, Kimberly A.

AU - Jeruzal, Jessica

AU - La Pean Kirschner, Alison

AU - Farrell, Michael H.

AU - Spellecy, Ryan

N1 - Funding Information: Acknowledgments Work on this paper was supported by the Program in Genomics and Ethics at the Medical College of Wisconsin. The Program in Genomics and Ethics is funded by the Advancing a Healthier Wisconsin Research and Education Program Fund, a component of the Advancing a Healthier Wisconsin endowment at the Medical College of Wisconsin.

PY - 2014/9

Y1 - 2014/9

N2 - This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.

AB - This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.

KW - Autonomy

KW - Community engagement

KW - Genomic medicine

KW - Informed consent

UR - http://www.scopus.com/inward/record.url?scp=84907301107&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84907301107&partnerID=8YFLogxK

U2 - 10.1007/s10730-014-9247-3

DO - 10.1007/s10730-014-9247-3

M3 - Article

C2 - 25117558

AN - SCOPUS:84907301107

SN - 0956-2737

VL - 26

SP - 185

EP - 202

JO - Hec Forum

JF - Hec Forum

IS - 3

ER -

The limits of traditional approaches to informed consent for genomic medicine

Abstract

Bibliographical note

Keywords

UN SDGs

Publisher link

Find It

Other files and links

Fingerprint

Cite this