The intersection of social determinants of health and family care of people living with Alzheimer's disease and related dementias: A public health opportunity

Joseph E. Gaugler, Soo Borson, Fayron Epps, Regina A. Shih, Lauren J. Parker, Lisa C. McGuire

Research output: Contribution to journalArticlepeer-review

Abstract

In this Perspective article, we highlight current research to illustrate the intersection of social determinants of health (SDOHs) and Alzheimer's disease and related dementia (ADRD) caregiving. We then outline how public health can support ADRD family caregivers in the United States. Emerging research suggests that family care for persons with ADRD is influenced by SDOHs. Public health actions that address these intersections such as improved surveillance and identification of ADRD caregivers; building and enhancing community partnerships; advancing dementia-capable health care and related payment incentives; and reducing the stigma of dementia and ADRD caregiving can potentially enhance the health and well-being of dementia caregivers. By engaging in one or all of these actions, public health practitioners could more effectively address the myriad of challenges facing ADRD caregivers most at risk for emotional, social, financial, psychological, and health disruption.

Original languageEnglish (US)
JournalAlzheimer's and Dementia
DOIs
StateAccepted/In press - 2023

Bibliographical note

Funding Information:
The authors would like to acknowledge Elma Johnson, Maya Koffski, Jason Hernandez, and Kathy Kelly for their assistance with this manuscript. This publication was supported by the Centers for Disease Control and Prevention (CDC) of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,600,000, which was 100% funded by the CDC/HHS (1 NU58DP006910‐01‐00; Director, J. E. Gaugler). The authors also acknowledge that this work resulted from the development plan and activities of Dr. Epps' career development award through the National Institute on Aging, a division of the National Institutes of Health (NIH; K23AG065452). The findings and conclusions in this report are those of the authors and not necessarily the official position of the CDC or the NIH. The CDC reviewed and provided clearance for submission for publication.

Publisher Copyright:
© 2023 The Authors. Alzheimer's & Dementia published by Wiley Periodicals LLC on behalf of Alzheimer's Association.

Keywords

  • Alzheimer's disease
  • dementia
  • family caregiving
  • Informal caregiving
  • long-term services and supports
  • public health
  • social determinants of health

PubMed: MeSH publication types

  • Journal Article

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