The importance of transplant program measures: Surveys of three national patient advocacy groups

Cory R. Schaffhausen, Marilyn J. Bruin, Sauman Chu, Andrew Wey, Jon J. Snyder, Bertram L. Kasiske, Ajay K. Israni

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

The Scientific Registry of Transplant Recipients (SRTR) provides federally mandated program-specific transplant data to the public. Currently, there is little understanding of how different program measures are prioritized by patients in selecting a program for transplantation. This study recruited 479 transplant advocacy group members from mailing lists and social media of the National Kidney Foundation (NKF), transplant families (TF), and Transplant Recipient International Organization (TRIO). Survey participants identified how many different programs would be reasonable to consider and viewed four measures that have recently been displayed on SRTR public search result websites and six measures not recently displayed and indicated importance on a 5-point scale. Four hundred two completed the survey (TF = 26; TRIO = 34; NKF = 342). Seventy-eight percent indicated that considering more than one program would be reasonable. Linear mixed models adjusted for organization, education, and gender. Likert scores for pretransplant (transplant rate) and transplant volume measures were similar and were very or extremely important to over 80% of participants. Posttransplant (survival after transplant) was rated as 0.52 points higher, confidence interval (0.41, 0.64). Results indicate that many patient advocacy group members find a choice between two or more programs reasonable and value multiple measures when assessing programs where they may want to undergo transplantation.

Original languageEnglish (US)
Article numbere13426
JournalClinical Transplantation
Volume32
Issue number12
DOIs
StatePublished - Dec 2018

Fingerprint

Patient Advocacy
Transplants
Organizations
Registries
Transplantation
Social Media
Kidney
Surveys and Questionnaires
Linear Models
Confidence Intervals
Education
Survival
Transplant Recipients

Keywords

  • national
  • patient
  • quality metrics
  • survey

Cite this

The importance of transplant program measures : Surveys of three national patient advocacy groups. / Schaffhausen, Cory R.; Bruin, Marilyn J.; Chu, Sauman; Wey, Andrew; Snyder, Jon J.; Kasiske, Bertram L.; Israni, Ajay K.

In: Clinical Transplantation, Vol. 32, No. 12, e13426, 12.2018.

Research output: Contribution to journalArticle

Schaffhausen, Cory R. ; Bruin, Marilyn J. ; Chu, Sauman ; Wey, Andrew ; Snyder, Jon J. ; Kasiske, Bertram L. ; Israni, Ajay K. / The importance of transplant program measures : Surveys of three national patient advocacy groups. In: Clinical Transplantation. 2018 ; Vol. 32, No. 12.
@article{6ffeef8b77f5456199ebf8491d2ff202,
title = "The importance of transplant program measures: Surveys of three national patient advocacy groups",
abstract = "The Scientific Registry of Transplant Recipients (SRTR) provides federally mandated program-specific transplant data to the public. Currently, there is little understanding of how different program measures are prioritized by patients in selecting a program for transplantation. This study recruited 479 transplant advocacy group members from mailing lists and social media of the National Kidney Foundation (NKF), transplant families (TF), and Transplant Recipient International Organization (TRIO). Survey participants identified how many different programs would be reasonable to consider and viewed four measures that have recently been displayed on SRTR public search result websites and six measures not recently displayed and indicated importance on a 5-point scale. Four hundred two completed the survey (TF = 26; TRIO = 34; NKF = 342). Seventy-eight percent indicated that considering more than one program would be reasonable. Linear mixed models adjusted for organization, education, and gender. Likert scores for pretransplant (transplant rate) and transplant volume measures were similar and were very or extremely important to over 80{\%} of participants. Posttransplant (survival after transplant) was rated as 0.52 points higher, confidence interval (0.41, 0.64). Results indicate that many patient advocacy group members find a choice between two or more programs reasonable and value multiple measures when assessing programs where they may want to undergo transplantation.",
keywords = "national, patient, quality metrics, survey",
author = "Schaffhausen, {Cory R.} and Bruin, {Marilyn J.} and Sauman Chu and Andrew Wey and Snyder, {Jon J.} and Kasiske, {Bertram L.} and Israni, {Ajay K.}",
year = "2018",
month = "12",
doi = "10.1111/ctr.13426",
language = "English (US)",
volume = "32",
journal = "Clinical Transplantation",
issn = "0902-0063",
publisher = "Wiley-Blackwell",
number = "12",

}

TY - JOUR

T1 - The importance of transplant program measures

T2 - Surveys of three national patient advocacy groups

AU - Schaffhausen, Cory R.

AU - Bruin, Marilyn J.

AU - Chu, Sauman

AU - Wey, Andrew

AU - Snyder, Jon J.

AU - Kasiske, Bertram L.

AU - Israni, Ajay K.

PY - 2018/12

Y1 - 2018/12

N2 - The Scientific Registry of Transplant Recipients (SRTR) provides federally mandated program-specific transplant data to the public. Currently, there is little understanding of how different program measures are prioritized by patients in selecting a program for transplantation. This study recruited 479 transplant advocacy group members from mailing lists and social media of the National Kidney Foundation (NKF), transplant families (TF), and Transplant Recipient International Organization (TRIO). Survey participants identified how many different programs would be reasonable to consider and viewed four measures that have recently been displayed on SRTR public search result websites and six measures not recently displayed and indicated importance on a 5-point scale. Four hundred two completed the survey (TF = 26; TRIO = 34; NKF = 342). Seventy-eight percent indicated that considering more than one program would be reasonable. Linear mixed models adjusted for organization, education, and gender. Likert scores for pretransplant (transplant rate) and transplant volume measures were similar and were very or extremely important to over 80% of participants. Posttransplant (survival after transplant) was rated as 0.52 points higher, confidence interval (0.41, 0.64). Results indicate that many patient advocacy group members find a choice between two or more programs reasonable and value multiple measures when assessing programs where they may want to undergo transplantation.

AB - The Scientific Registry of Transplant Recipients (SRTR) provides federally mandated program-specific transplant data to the public. Currently, there is little understanding of how different program measures are prioritized by patients in selecting a program for transplantation. This study recruited 479 transplant advocacy group members from mailing lists and social media of the National Kidney Foundation (NKF), transplant families (TF), and Transplant Recipient International Organization (TRIO). Survey participants identified how many different programs would be reasonable to consider and viewed four measures that have recently been displayed on SRTR public search result websites and six measures not recently displayed and indicated importance on a 5-point scale. Four hundred two completed the survey (TF = 26; TRIO = 34; NKF = 342). Seventy-eight percent indicated that considering more than one program would be reasonable. Linear mixed models adjusted for organization, education, and gender. Likert scores for pretransplant (transplant rate) and transplant volume measures were similar and were very or extremely important to over 80% of participants. Posttransplant (survival after transplant) was rated as 0.52 points higher, confidence interval (0.41, 0.64). Results indicate that many patient advocacy group members find a choice between two or more programs reasonable and value multiple measures when assessing programs where they may want to undergo transplantation.

KW - national

KW - patient

KW - quality metrics

KW - survey

UR - http://www.scopus.com/inward/record.url?scp=85055748436&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85055748436&partnerID=8YFLogxK

U2 - 10.1111/ctr.13426

DO - 10.1111/ctr.13426

M3 - Article

C2 - 30326164

AN - SCOPUS:85055748436

VL - 32

JO - Clinical Transplantation

JF - Clinical Transplantation

SN - 0902-0063

IS - 12

M1 - e13426

ER -