The emotional ramifications of unmet need in dementia caregiving

Joseph E. Gaugler, Keith A. Anderson, Corinne R. Leach, Charles D. Smith, Frederick A. Schmitt, Marta Mendiondo

Research output: Contribution to journalArticlepeer-review

51 Scopus citations


Using a unique measure of unmet need that taps into several dimensions of informal long-term care, the present study included data from 694 informal caregivers of persons suffering from dementia at different times in the caregiving career (e.g., at home, following institutionalization, following the death of the care recipient). Multivariate regression models found that unmet need for either confidante or formal support had key implications for caregivers' emotional distress in each of the care situations. The findings suggest that conceptual models should incorporate unmet need as a viable predictor of caregiving outcomes and that assessment of unmet need may provide guidance in the development of more refined psychosocial and community-based intervention protocols.

Original languageEnglish (US)
Pages (from-to)369-379
Number of pages11
JournalAmerican Journal of Alzheimer's Disease and Other Dementias
Issue number6
StatePublished - 2004
Externally publishedYes


  • Activities of daily living
  • Alzheimer's disease
  • Caregiver
  • Dementia
  • Instrumental activities of daily living
  • Palliative care
  • Unmet need


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