The Danish Twin Registry: Linking surveys, national registers, and biological information

Axel Skytthe, Lene Christiansen, Kirsten Ohm Kyvik, Frans L. Bodker, Lars Hvidberg, Inge Petersen, Morten M.F. Nielsen, Paul Bingley, Jacob Hjelmborg, Qihua Tan, Niels V. Holm, James W. Vaupel, Matt McGue, Kaare Christensen

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71 Scopus citations


Over the last 60 years, the resources and the research in the Danish Twin Registry (DTR) have periodically been summarized. Here, we give a short overview of the DTR and a more comprehensive description of new developments in the twenty-first century. First, we outline our experience over the last decade of combining questionnaire and survey data with national demographic, social, and health registers in Statistics Denmark. Second, we describe our most recent data collection effort, which was conducted during the period 2008-2011 and included both in-person assessments of 14,000+ twins born 1931-1969 and sampling of biological material, hereby expanding and consolidating the DTR biobank. Third, two examples of intensively studied twin cohorts are given. The new developments in the DTR in the last decade have facilitated the ongoing research and laid the groundwork for new research directions.

Original languageEnglish (US)
Pages (from-to)104-111
Number of pages8
JournalTwin Research and Human Genetics
Issue number1
StatePublished - Feb 2013


  • Denmark
  • biobank
  • birth weight discordance
  • metabolic syndrome
  • register-based research
  • twin register


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