Abstract
Increased knowledge and awareness of the long-term complications from childhood cancer has illuminated a clear need for healthcare delivery systems that address the specific needs of survivors. We report a descriptive framework of such a healthcare infrastructure within a single institution to provide education for other healthcare professionals developing a cancer survivorship program at their institution. This cross-sectional study described the structure and patient population of the Cancer Survivor Program (CSP) in the Department of Pediatrics at the University of Minnesota (UM). It relied on the UM Cancer Survivorship Database maintained by the Division of Pediatric Hematology/Oncology. Demographic and relevant survivorship information is summarized for survivors seen from August 1, 2003 to May 1, 2013. The study population included 504 survivors of childhood cancer with a mean age of 21.4 years (range 3–59 years). Most were non-Hispanic white (455/504, 90 %) and the mean interval between prior cancer diagnosis and entry into the CSP was 13.7 years (range 1–56 years). The breakdown of cancer diagnoses among survivors is reflective of the incidence of childhood malignancies in the general population with the exception of an under-representation of survivors with brain tumors. Nearly 25 % of survivors received their oncology treatment at an outside institution. With the appropriate healthcare infrastructure, a pediatric cancer survivorship program can meet the needs of a large survivor population, many of whom are adults and are seeking care from outside institutions.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 471-476 |
| Number of pages | 6 |
| Journal | Journal of Cancer Education |
| Volume | 30 |
| Issue number | 3 |
| DOIs | |
| State | Published - Sep 13 2015 |
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Keywords
- Cancer survivor program
- Childhood cancer
- Healthcare system
- Program evaluation
Cite this
The Clinical and Research Infrastructure of a Childhood Cancer Survivor Program. / Sadak, Karim Thomas; Bahr, Tori L.; Moen, Catherine; Neglia, Joseph P.; Jatoi, Aminah.
In: Journal of Cancer Education, Vol. 30, No. 3, 13.09.2015, p. 471-476.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - The Clinical and Research Infrastructure of a Childhood Cancer Survivor Program
AU - Sadak, Karim Thomas
AU - Bahr, Tori L.
AU - Moen, Catherine
AU - Neglia, Joseph P.
AU - Jatoi, Aminah
PY - 2015/9/13
Y1 - 2015/9/13
N2 - Increased knowledge and awareness of the long-term complications from childhood cancer has illuminated a clear need for healthcare delivery systems that address the specific needs of survivors. We report a descriptive framework of such a healthcare infrastructure within a single institution to provide education for other healthcare professionals developing a cancer survivorship program at their institution. This cross-sectional study described the structure and patient population of the Cancer Survivor Program (CSP) in the Department of Pediatrics at the University of Minnesota (UM). It relied on the UM Cancer Survivorship Database maintained by the Division of Pediatric Hematology/Oncology. Demographic and relevant survivorship information is summarized for survivors seen from August 1, 2003 to May 1, 2013. The study population included 504 survivors of childhood cancer with a mean age of 21.4 years (range 3–59 years). Most were non-Hispanic white (455/504, 90 %) and the mean interval between prior cancer diagnosis and entry into the CSP was 13.7 years (range 1–56 years). The breakdown of cancer diagnoses among survivors is reflective of the incidence of childhood malignancies in the general population with the exception of an under-representation of survivors with brain tumors. Nearly 25 % of survivors received their oncology treatment at an outside institution. With the appropriate healthcare infrastructure, a pediatric cancer survivorship program can meet the needs of a large survivor population, many of whom are adults and are seeking care from outside institutions.
AB - Increased knowledge and awareness of the long-term complications from childhood cancer has illuminated a clear need for healthcare delivery systems that address the specific needs of survivors. We report a descriptive framework of such a healthcare infrastructure within a single institution to provide education for other healthcare professionals developing a cancer survivorship program at their institution. This cross-sectional study described the structure and patient population of the Cancer Survivor Program (CSP) in the Department of Pediatrics at the University of Minnesota (UM). It relied on the UM Cancer Survivorship Database maintained by the Division of Pediatric Hematology/Oncology. Demographic and relevant survivorship information is summarized for survivors seen from August 1, 2003 to May 1, 2013. The study population included 504 survivors of childhood cancer with a mean age of 21.4 years (range 3–59 years). Most were non-Hispanic white (455/504, 90 %) and the mean interval between prior cancer diagnosis and entry into the CSP was 13.7 years (range 1–56 years). The breakdown of cancer diagnoses among survivors is reflective of the incidence of childhood malignancies in the general population with the exception of an under-representation of survivors with brain tumors. Nearly 25 % of survivors received their oncology treatment at an outside institution. With the appropriate healthcare infrastructure, a pediatric cancer survivorship program can meet the needs of a large survivor population, many of whom are adults and are seeking care from outside institutions.
KW - Cancer survivor program
KW - Childhood cancer
KW - Healthcare system
KW - Program evaluation
UR - http://www.scopus.com/inward/record.url?scp=84941317423&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84941317423&partnerID=8YFLogxK
U2 - 10.1007/s13187-014-0713-z
DO - 10.1007/s13187-014-0713-z
M3 - Article
C2 - 25099236
AN - SCOPUS:84941317423
VL - 30
SP - 471
EP - 476
JO - Journal of Cancer Education
JF - Journal of Cancer Education
SN - 0885-8195
IS - 3
ER -