Special Education Supports and Services for Rett Syndrome: Parent Perceptions and Satisfaction

Kelsey Larriba-Quest, Breanne J. Byiers, Arthur Beisang, Alyssa M. Merbler, Frank J. Symons

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

There are no published studies describing educational experiences for girls with Rett syndrome. Given the extensive educational needs associated with Rett syndrome, it is important to understand how families perceive their daughters’ educational experiences to inform education service provision. The purpose of this study was to survey parents of school-aged children with Rett syndrome to describe the educational services that they receive and understand parents’ perceptions of and satisfaction with the special educational and related services. The majority of parents were satisfied with their daughters’ educational services. Communication was the most frequently endorsed priority skill area, and many parents expressed frustration with limited access to augmentative and alternative communication (AAC) devices and staff training in their use. These results suggest there is a need for high-quality speech therapy and an emphasis on AAC support.

Original languageEnglish (US)
Pages (from-to)49-64
Number of pages16
JournalIntellectual and developmental disabilities
Volume58
Issue number1
DOIs
StatePublished - Feb 2020

Bibliographical note

Publisher Copyright:
© 2020 American Association on Mental Retardation. All rights reserved.

Keywords

  • Alternative communication
  • Augmentative
  • Parent satisfaction
  • Related services
  • Rett syndrome
  • Special education

PubMed: MeSH publication types

  • Journal Article
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

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