Seeking in Cycles: How Users Leverage Personal Information Ecosystems to Find Mental Health Information

Ashlee Milton, Juan F. Maestre, Abhishek Roy, Rebecca Umbach, Stevie Chancellor

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Information is crucial to how people understand their mental health and well-being, and many turn to online sources found through search engines and social media. We present an interview study (n = 17) of participants who use online platforms to seek information about their mental illnesses. Participants use their personal information ecosystems in a cyclical process to find information. This cycle is driven by the adoption of new information and questioning the credibility of information. Privacy concerns fueled by perceptions of stigma and platform design also influence their information-seeking decisions. Our work proposes theoretical implications for social computing and information retrieval on information seeking in users' personal information ecosystems. We offer design implications to support users in navigating personal information ecosystems to find mental health information.

Original languageEnglish (US)
Title of host publicationCHI 2024 - Proceedings of the 2024 CHI Conference on Human Factors in Computing Sytems
PublisherAssociation for Computing Machinery
ISBN (Electronic)9798400703300
DOIs
StatePublished - May 11 2024
Event2024 CHI Conference on Human Factors in Computing Sytems, CHI 2024 - Hybrid, Honolulu, United States
Duration: May 11 2024May 16 2024

Publication series

NameConference on Human Factors in Computing Systems - Proceedings

Conference

Conference2024 CHI Conference on Human Factors in Computing Sytems, CHI 2024
Country/TerritoryUnited States
CityHybrid, Honolulu
Period5/11/245/16/24

Bibliographical note

Publisher Copyright:
© 2024 Copyright held by the owner/author(s)

Keywords

  • Information Seeking
  • Mental Health
  • Social Media

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