Returning Results in Biobank Research: Global Trends and Solutions

Eva De Clercq, Jane Kaye, Susan M. Wolf, Barbara A. Koenig, Bernice S. Elger

Research output: Contribution to journalReview articlepeer-review

3 Scopus citations

Abstract

In many countries around the world, biobanks have become crucial resources for the conduct of biomedical research, facilitating many kinds of research, including international collaborations. The focus of this special issue is on a looming ethical issue that has become a focus of debate-the return of research results and incidental findings to biobank participants. Although the articles in this issue do not provide a final answer to the ethical, legal, and social dilemmas that arise in the context of the return of results, the intent of the collection is to approach this issue from multiple perspectives and within an international context spanning the United Kingdom, continental Europe including Eastern Europe, the United States, and the Middle East.

Original languageEnglish (US)
Pages (from-to)128-131
Number of pages4
JournalGenetic Testing and Molecular Biomarkers
Volume21
Issue number3
DOIs
StatePublished - Mar 2017

Bibliographical note

Funding Information:
This work was supported by grant number R01 CA154517 from the National Cancer Institute (NCI) and National Human Genome Research Institute (NHGRI) at the National Institutes of Health (NIH), along with funding from the Brocher Foundation, the Wellcome Trust, and the Swiss Academy of Medical Sciences. The views expressed are those of the authors and not necessarily the views of the funders.

Keywords

  • Biobank
  • dilemma
  • ethics
  • guidelines
  • return of results

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