Research Needs for Effective Transition in Lifelong Care of Congenital Genitourinary Conditions

A Workshop Sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases

Michael H. Hsieh, Hadley M. Wood, Brad E. Dicianno, Nienke P. Dosa, Veronica Gomez-Lobo, Tej K. Mattoo, Rosalia Misseri, Jenna M. Norton, Kathleen J. Sawin, Peter B Scal, James E. Wright, Robert A. Star, Tamara Bavendam

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

Over the last 5 decades, health-care advances have yielded quantum improvements in the life expectancy of individuals with congenital genitourinary conditions (CGCs), leading to a crisis of care. Many individuals with CGC enter adulthood unprepared to manage their condition. Pediatric CGC specialists lack training to manage adulthood-related health-care issues, whereas adult genitourinary specialists lack training within the context of CGCs. To address these challenges, the National Institutes of Diabetes and Digestive and Kidney Diseases convened individuals with CGCs and experts from a variety of fields to identify research needs to improve transitional urology care. This paper outlines identified research needs.

Original languageEnglish (US)
Pages (from-to)261-271
Number of pages11
JournalUrology
Volume103
DOIs
StatePublished - May 1 2017

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National Institute of Diabetes and Digestive and Kidney Diseases (U.S.)
Delivery of Health Care
Education
Urology
Life Expectancy
Research
Pediatrics

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Research Needs for Effective Transition in Lifelong Care of Congenital Genitourinary Conditions : A Workshop Sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases. / Hsieh, Michael H.; Wood, Hadley M.; Dicianno, Brad E.; Dosa, Nienke P.; Gomez-Lobo, Veronica; Mattoo, Tej K.; Misseri, Rosalia; Norton, Jenna M.; Sawin, Kathleen J.; Scal, Peter B; Wright, James E.; Star, Robert A.; Bavendam, Tamara.

In: Urology, Vol. 103, 01.05.2017, p. 261-271.

Research output: Contribution to journalArticle

Hsieh, MH, Wood, HM, Dicianno, BE, Dosa, NP, Gomez-Lobo, V, Mattoo, TK, Misseri, R, Norton, JM, Sawin, KJ, Scal, PB, Wright, JE, Star, RA & Bavendam, T 2017, 'Research Needs for Effective Transition in Lifelong Care of Congenital Genitourinary Conditions: A Workshop Sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases', Urology, vol. 103, pp. 261-271. https://doi.org/10.1016/j.urology.2016.12.052
Hsieh, Michael H. ; Wood, Hadley M. ; Dicianno, Brad E. ; Dosa, Nienke P. ; Gomez-Lobo, Veronica ; Mattoo, Tej K. ; Misseri, Rosalia ; Norton, Jenna M. ; Sawin, Kathleen J. ; Scal, Peter B ; Wright, James E. ; Star, Robert A. ; Bavendam, Tamara. / Research Needs for Effective Transition in Lifelong Care of Congenital Genitourinary Conditions : A Workshop Sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases. In: Urology. 2017 ; Vol. 103. pp. 261-271.
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