Abstract
Increasing American Indian/Alaska Native (AI/AN) representation in genetic research is critical to ensuring that personalized medicine discoveries do not widen AI/AN health disparities by only benefiting well-represented populations. One reason for the under-representation of AIs/ANs in research is warranted research distrust due to abuse of some AI/AN communities in research. An approach to easing the tension between protecting AI/AN communities and increasing the representation of AI/AN persons in genetic research is community-based participatory research. This approach was used in a collaboration between a tribe and academic researchers in efforts to increase AI/AN participation in genetic research. From the lessons learned, the authors propose recommendations to researchers that may aid in conducting collaborative and respectful research with AI/AN tribes/communities and ultimately assist in increasing representation of AIs/ANs in personalized medicine discoveries.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 67-74 |
| Number of pages | 8 |
| Journal | Personalized Medicine |
| Volume | 18 |
| Issue number | 1 |
| DOIs | |
| State | Published - Jan 2021 |
Bibliographical note
Publisher Copyright:© 2021
Keywords
- American Indians/Alaska Natives
- community-based participatory research
- ethical issues
- genetics
- health disparities
- personalized medicine
- racial/ethnic representation
