Racial Differences in Nursing Home Quality of Life Among Residents Living With Alzheimer’s Disease and Related Dementias

Tetyana Pylypiv Shippee, Romil R. Parikh, Zachary G. Baker, Taylor I. Bucy, Weiwen Ng, Stephanie Jarosek, Xuanzi Qin, Mark Woodhouse, Manka Nkimbeng, Teresa McCarthy

Research output: Contribution to journalArticlepeer-review

Abstract

Among nursing home (NH) residents with Alzheimer’s disease (AD) and AD-related dementias (AD/ADRD), racial/ethnic disparities in quality of care exist. However, little is known about quality of life (QoL). This study examines racial/ethnic differences in self-reported QoL among NH residents with AD/ADRD. Methods: Validated, in-person QoL surveys from 12,562 long-stay NH residents with AD/ADRD in Minnesota (2012–2015) were linked to Minimum Data Set assessments and facility characteristics. Hierarchical linear models assessed disparities in resident-reported mean QoL score (range, 0–100 points), adjusting for case-mix and facility factors. Results: Compared to White residents, racially/ethnically minoritized residents reported significantly lower total mean QoL scores (75.53 points vs. 80.34 points, p <.001). After adjustment for resident- and facility-level characteristics, significant racial/ethnic differences remained, with large disparities in food enjoyment, attention from staff, and engagement domains. Discussion: Policy changes and practice guidelines are needed to address racial/ethnic disparities in QoL of NH residents with AD/ADRD.

Original languageEnglish (US)
Pages (from-to)379-389
Number of pages11
JournalJournal of aging and health
Volume36
Issue number5-6
DOIs
StateAccepted/In press - 2023

Bibliographical note

Publisher Copyright:
© The Author(s) 2023.

Keywords

  • nursing home residents with dementia
  • quality of life among people with dementia
  • racial/ethnic disparities

PubMed: MeSH publication types

  • Journal Article
  • Research Support, N.I.H., Extramural

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