TY - JOUR
T1 - Racial Differences in Nursing Home Quality of Life Among Residents Living With Alzheimer’s Disease and Related Dementias
AU - Shippee, Tetyana Pylypiv
AU - Parikh, Romil R.
AU - Baker, Zachary G.
AU - Bucy, Taylor I.
AU - Ng, Weiwen
AU - Jarosek, Stephanie
AU - Qin, Xuanzi
AU - Woodhouse, Mark
AU - Nkimbeng, Manka
AU - McCarthy, Teresa
N1 - Publisher Copyright:
© The Author(s) 2023.
PY - 2024/6
Y1 - 2024/6
N2 - Among nursing home (NH) residents with Alzheimer’s disease (AD) and AD-related dementias (AD/ADRD), racial/ethnic disparities in quality of care exist. However, little is known about quality of life (QoL). This study examines racial/ethnic differences in self-reported QoL among NH residents with AD/ADRD. Methods: Validated, in-person QoL surveys from 12,562 long-stay NH residents with AD/ADRD in Minnesota (2012–2015) were linked to Minimum Data Set assessments and facility characteristics. Hierarchical linear models assessed disparities in resident-reported mean QoL score (range, 0–100 points), adjusting for case-mix and facility factors. Results: Compared to White residents, racially/ethnically minoritized residents reported significantly lower total mean QoL scores (75.53 points vs. 80.34 points, p <.001). After adjustment for resident- and facility-level characteristics, significant racial/ethnic differences remained, with large disparities in food enjoyment, attention from staff, and engagement domains. Discussion: Policy changes and practice guidelines are needed to address racial/ethnic disparities in QoL of NH residents with AD/ADRD.
AB - Among nursing home (NH) residents with Alzheimer’s disease (AD) and AD-related dementias (AD/ADRD), racial/ethnic disparities in quality of care exist. However, little is known about quality of life (QoL). This study examines racial/ethnic differences in self-reported QoL among NH residents with AD/ADRD. Methods: Validated, in-person QoL surveys from 12,562 long-stay NH residents with AD/ADRD in Minnesota (2012–2015) were linked to Minimum Data Set assessments and facility characteristics. Hierarchical linear models assessed disparities in resident-reported mean QoL score (range, 0–100 points), adjusting for case-mix and facility factors. Results: Compared to White residents, racially/ethnically minoritized residents reported significantly lower total mean QoL scores (75.53 points vs. 80.34 points, p <.001). After adjustment for resident- and facility-level characteristics, significant racial/ethnic differences remained, with large disparities in food enjoyment, attention from staff, and engagement domains. Discussion: Policy changes and practice guidelines are needed to address racial/ethnic disparities in QoL of NH residents with AD/ADRD.
KW - nursing home residents with dementia
KW - quality of life among people with dementia
KW - racial/ethnic disparities
UR - http://www.scopus.com/inward/record.url?scp=85165913412&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85165913412&partnerID=8YFLogxK
U2 - 10.1177/08982643231191164
DO - 10.1177/08982643231191164
M3 - Article
C2 - 37493607
AN - SCOPUS:85165913412
SN - 0898-2643
VL - 36
SP - 379
EP - 389
JO - Journal of aging and health
JF - Journal of aging and health
IS - 5-6
ER -