Psychosocial impact of pediatric alopecia areata: A survey study

Sarah Benton, Gretchen Bellefeuille, Katelyn J Rypka, Audrey Nguyen, Ora Raymond, Kristina G Gorbatenko-Roth, Sheilagh Maguiness, Maria K Hordinsky

Research output: Contribution to journalArticlepeer-review

1 Scopus citations


This study, which aimed to identify distress by sites of hair loss and psychosocial stressors for a pediatric alopecia areata population, enrolled 50 patients (32 females, 18 males, ages 7–17 years) from pediatric dermatology clinics, including a monthly hair disease clinic. Patients completed a 47-question survey. Scalp hair loss was rated as often or always bothersome in 34.7%; eyebrow loss in 24.3%; and eyelash loss in 21.6%, and 6 patients (12%) discontinued a social activity due to hair loss. Referral to behavioral/mental health specialists should be considered to improve psychosocial outcomes.

Original languageEnglish (US)
Pages (from-to)312-314
Number of pages3
JournalPediatric Dermatology
Issue number2
StatePublished - Mar 1 2023

Bibliographical note

Funding Information:
The University of Minnesota, Department of Dermatology kindly supported this work. This study was conducted with approval from the University of Minnesota Institutional Review Board (STUDY00004253). Inclusion criteria included patients ages 7–17 years diagnosed with AA seen in-person or virtually in pediatric specialty hair or pediatric general dermatology clinics from February 2019 to September 2021. Consent from a guardian and assent from the patient was obtained. A 47-question online survey was created by the research team using the REDCap platform and written at a level at which patients as young as 7 years could complete it independently with minimal assistance from their guardian or research staff. This was determined with guidance from the psychologist on the research team. The survey included questions on demographics, clinical course, bothersome areas of disease, and social activity attendance. Statistical analyses were performed using IBM SPSS Version 27.0 (IBM Corp, Armonk, New York). Pearson Chi-Square tests compared categorical values, and statistical significance was set at p =.05. Demographic and disease subtype information is reported in Table 1.

Publisher Copyright:
© 2023 Wiley Periodicals LLC.


  • alopecia areata
  • burden of disease
  • pediatric dermatology
  • quality of life
  • survey

PubMed: MeSH publication types

  • Journal Article


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