Profiles of Caregiving Arrangements of Community-dwelling People Living with Probable Dementia

Eric Jutkowitz, Lauren L. Mitchell, Barbara H. Bardenheier, Joseph E. Gaugler

Research output: Contribution to journalArticlepeer-review

2 Scopus citations

Abstract

People living with dementia receive care from multiple caregivers, but little is known about the structure of their caregiving arrangements. This study used the Health and Retirement Study and latent class analyses to identify subgroups of caregiving arrangements based on caregiving hours received from spouses, children, other family/friends, and paid individuals among married (n = 361) and unmarried (n = 473) community-dwelling people with probable dementia. Three classes in the married sample (class 1 “low hours with shared care,” class 2 “spouse-dominant care,” and class 3 “children-dominant care”) were identified. In class 1, spouses, children, and paid individuals provided 53%, 22%, and 26% of the caregiving hours, respectively. Three classes in the unmarried sample (class 1 “low hours with shared care,” class 2 “children-dominant care,” and class 3 “paid-dominant care”) were identified. In unmarried class 1, children, other family/friends, and paid individuals provided 35%, 41% and 24% of the caregiving hours, respectively.

Original languageEnglish (US)
Pages (from-to)860-875
Number of pages16
JournalJournal of Aging and Social Policy
Volume34
Issue number6
Early online dateMay 18 2021
DOIs
StatePublished - May 18 2021

Bibliographical note

Funding Information:
This work was supported by grants from National Institute on Aging (1R21AG059623-01 and 1R01AG060871-01 both to EJ), from the Brown School of Public Health (EJ), and by the Office of Academic Affiliations, Department of Veterans Affairs (LLM). The Health and Retirement Study is produced and distributed by the University of Michigan with funding from the National Institute on Aging (grant number NIA U01AG009740) Ann Arbor, MI.

Funding Information:
The Health and Retirement Study is produced and distributed by the University of Michigan with funding from the National Institute on Aging (grant number NIA U01AG009740) Ann Arbor, MI.

Publisher Copyright:
© 2021 Taylor & Francis.

Keywords

  • Dementia
  • caregiving
  • long-term care

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