Policy Implications, Eligibility, and Demographic Characteristics of People With Intellectual Disability Who Access Self-Directed Funding in the United States

Elizabeth Cherry, Roger J. Stancliffe, Eric Emerson, Renata Tichá

Research output: Contribution to journalArticlepeer-review

Abstract

This study identifies factors (state of residence, personal characteristics, and living situation) associated with access to self-directed funding (SDF) for adults with intellectual disability in the United States. Data from 10,033 participants from 26 states in the 2012-2013 National Core Indicators Adult Consumer Survey were analyzed. We examined state, age group, residence type, disability diagnoses, mental health status, and type of disability support funding used. Availability of SDF for people with ID varied by state and aligned mostly with state-by-state policy data on SDF eligibility and availability. The results of a logistic regression analysis demonstrated that access to SDF was lower in older adults and higher for people who lived in their parents' or relatives' home, an independent home, and with certain personal characteristics. Potential influences from policy and practice, and approaches to increase access to SDF are discussed.

Original languageEnglish (US)
Pages (from-to)123-140
Number of pages18
JournalIntellectual and developmental disabilities
Volume59
Issue number2
DOIs
StatePublished - Apr 1 2021

Bibliographical note

Publisher Copyright:
© 2021 American Association on Mental Retardation. All rights reserved.

Keywords

  • disability policy
  • individualized funding
  • intellectual disability
  • national core indicators
  • self-directed funding

PubMed: MeSH publication types

  • Journal Article

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