Pediatric End-of-Life Care Skills Workshop: A Novel, Deliberate Practice Approach

Johannah M. Scheurer, Erik Norbie, Jeffrey K. Bye, Daniela Villacis-Calderon, Catherine S Heith, Anne C Woll, Dannell Shu, Kelly McManimon, Heidi J Kamrath, Naomi Goloff

Research output: Contribution to journalArticlepeer-review

Abstract

INTRODUCTION: Pediatric end of life (EOL) care skills are a high acuity, low occurrence skill set required by pediatric clinicians. Gaps in education and competence for this specialized care can lead to suboptimal patient care and clinician distress when caring for dying patients and their families.

METHODS: A half-day workshop using a deliberate practice approach was designed by an inter-professional workgroup including bereaved parent consultants. Pediatric fellows (neonatal-perinatal medicine, critical care, hematology oncology, blood and marrow transplant) and advanced practice providers learned and practiced EOL skills in a safe simulation environment with instruction from interprofessional facilitators and standardized patients. Participant perceived competence (self-efficacy) was measured before, immediately-post, and 3 months post workshop.

RESULTS: There were 28 first-time (of 34 total) participants in 4 pilot workshops. Participants reported significantly increased self-efficacy post-workshop for 6 of 9 ratings, which was sustained 3 months afterwards. Most (92%, n=22 of 24 respondents) reported incorporating the workshop training into clinical practice at 3-month follow-up.

CONCLUSIONS: With early success of the pilot workshops, future iterative work includes expanding workshops to earlier, interprofessional learners and collecting validity evidence for a competency-based performance checklist tool. A project website (https://z.umn.edu/PECS) was developed for local and collaborative efforts. 1.

Original languageEnglish (US)
JournalAcademic Pediatrics
DOIs
StatePublished - Nov 2022

Bibliographical note

Funding Information:
The authors wish to acknowledge the support of the M Simulation staff, faculty facilitators, bereaved parent consultants and standardized patients without whom the workshop would not be possible. We are grateful for the engagement of all the participants. We wish to also acknowledge the EOL educational work of the CS Mott Children's Hospital PPC Team,21 which provided inspiration for our work. Finally, we wish to acknowledge our patients who have died, and their families, for whom we dedicate these educational endeavors.

Funding Information:
The workshops were partially supported by the Zoya Palliative Care Memorial Fund (University of Minnesota Foundation) and an Assistant Professor Startup grant (to Johannah Scheurer, University of Minnesota Medical School). Neither funding source was involved in the project design, collection, analysis, or interpretation of data, in the writing of the report, nor in the decision to submit the report for publication.

Publisher Copyright:
© 2022 Academic Pediatric Association

Keywords

  • deliberate practice, end-of-life
  • pediatric fellow, pediatrics
  • simulation

PubMed: MeSH publication types

  • Journal Article

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