PatientsLikeMe and Online Patient Support Communities in Dermatology

  • Mindy D. Szeto
  • , Michelle Hook Sobotka
  • , Emily Woolhiser
  • , Pritika Parmar
  • , Jieying Wu
  • , Lina Alhanshali
  • , Robert P. Dellavalle

Research output: Contribution to journalArticlepeer-review

Abstract

Online patient-oriented platforms such as PatientsLikeMe (PLM) offer a venue for individuals with various diagnoses to share experiences and build community, though they may not be representative of the larger patient population. This potentially limits generalizability and raises concerns about the spread of misinformation, emphasizing the need for informed use and health care provider engagement.

Original languageEnglish (US)
Article numbere50453
JournalJMIR Dermatology
Volume7
DOIs
StatePublished - 2024

Bibliographical note

Publisher Copyright:
© Mindy D Szeto, Michelle Hook Sobotka, Emily Woolhiser, Pritika Parmar, Jieying Wu, Lina Alhanshali, Robert P Dellavalle.

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 16 - Peace, Justice and Strong Institutions
    SDG 16 Peace, Justice and Strong Institutions

Keywords

  • PLM
  • PatientsLikeMe
  • atopic dermatitis
  • community engagement
  • demographics
  • discussion boards
  • forums
  • internet
  • lived experience
  • misinformation
  • online support communities
  • prevalence
  • representation
  • social media

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