Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients: Consensus Recommendations from a Children’s Oncology Group Expert Panel

Wendy Landier, Jo Ann Ahern, Lamia P. Barakat, Smita Bhatia, Kristin M. Bingen, Patricia G. Bondurant, Susan L. Cohn, Sarah K. Dobrozsi, Maureen Haugen, Ruth Anne Herring, Mary C. Hooke, Melissa Martin, Kathryn Murphy, Amy R. Newman, Cheryl C. Rodgers, Kathleen S. Ruccione, Jeneane Sullivan, Marianne Weiss, Janice Withycombe, Lise YasuiMarilyn Hockenberry

Research output: Contribution to journalArticlepeer-review

54 Scopus citations


There is a paucity of data to support evidence-based practices in the provision of patient/family education in the context of a new childhood cancer diagnosis. Since the majority of children with cancer are treated on pediatric oncology clinical trials, lack of effective patient/family education has the potential to negatively affect both patient and clinical trial outcomes. The Children’s Oncology Group Nursing Discipline convened an interprofessional expert panel from within and beyond pediatric oncology to review available and emerging evidence and develop expert consensus recommendations regarding harmonization of patient/family education practices for newly diagnosed pediatric oncology patients across institutions. Five broad principles, with associated recommendations, were identified by the panel, including recognition that (1) in pediatric oncology, patient/family education is family-centered; (2) a diagnosis of childhood cancer is overwhelming and the family needs time to process the diagnosis and develop a plan for managing ongoing life demands before they can successfully learn to care for the child; (3) patient/family education should be an interprofessional endeavor with 3 key areas of focus: (a) diagnosis/treatment, (b) psychosocial coping, and (c) care of the child; (4) patient/family education should occur across the continuum of care; and (5) a supportive environment is necessary to optimize learning. Dissemination and implementation of these recommendations will set the stage for future studies that aim to develop evidence to inform best practices, and ultimately to establish the standard of care for effective patient/family education in pediatric oncology.

Original languageEnglish (US)
Pages (from-to)422-431
Number of pages10
JournalJournal of Pediatric Oncology Nursing
Issue number6
StatePublished - Nov 1 2016

Bibliographical note

Publisher Copyright:
© 2016, © 2016 by Association of Pediatric Hematology/Oncology Nurses.


  • Children’s Oncology Group
  • childhood cancer
  • new diagnosis
  • patient/family education


Dive into the research topics of 'Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients: Consensus Recommendations from a Children’s Oncology Group Expert Panel'. Together they form a unique fingerprint.

Cite this