Patient Quality of Life Improvement in Bullous Disease: A Review of Primary Literature and Considerations for the Clinician

Jessica J. Padniewski, Rob L. Shaver, Brittney Schultz, David R. Pearson

Research output: Contribution to journalReview articlepeer-review

Abstract

Autoimmune and inherited bullous disorders are rare skin diseases that may have a profound negative impact on quality of life (QOL). Common symptoms include pain, pruritus, and scarring, and complications may result in the loss of the ability to perform daily tasks. Diagnosis may have a negative psychological impact, and ongoing management may require a significant allocation of time and resources by both patients and providers. To provide patient-centered care, consideration of these factors is of utmost importance for the dermatologist treating patients with bullous disorders. Herein, we present a review of the primary literature evaluating QOL in autoimmune and inherited bullous disorders, including pemphigus, pemphigoid, epidermolysis bullosa, and Hailey-Hailey disease.

Original languageEnglish (US)
Pages (from-to)27-42
Number of pages16
JournalClinical, Cosmetic and Investigational Dermatology
Volume15
DOIs
StatePublished - 2022

Bibliographical note

Publisher Copyright:
© 2022 Padniewski et al.

Keywords

  • ABQOL
  • Autoimmune blistering disease
  • Bullous disease
  • DLQI
  • Epidermolysis bullosa
  • Hailey-Hailey
  • Pemphigoid
  • Pemphigus
  • Quality of life
  • TABQOL

PubMed: MeSH publication types

  • Journal Article
  • Review

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