Partners in caregiving: A psychoeducation program affecting dementia family caregivers' distress and caregiving outlook

Kenneth W. Hepburn, Marsha Lewis, Suzanne Narayan, Bruce Center, Jane Tornatore, Karin Lindstrom Bremer, Laura Nelson Kirk

Research output: Contribution to journalArticlepeer-review

23 Scopus citations

Abstract

This article presents the results of a randomized trial to test a psychoeducation intervention's ability to relieve or forestall dementia caregiver distress over a one-year period. We also introduce a global measure of caregiver distress developed during the trial. Based in a stress mediation framework, the intervention aimed to increase caregiver knowledge and skills and develop a more clinical perspective on caregiving through a six-week (2-hour per week) program. A total of 215 dyads (caregivers and care receivers) were randomized into two experimental groups and a wait-list control group. Results confirm the assertion that strengthening caregivers' ability to better understand and undertake their caregiving role staves off increasing distress (p = .035) and improves caregiving attitude (p = .016) at 6 months. However, at one-year, between-group effects deteriorated on key measures, pointing out an inherent weakness of offering a stand-alone program. The Distress measure demonstrated stability at six months (coefficient = .75) and twelve months (coefficient = .72).

Original languageEnglish (US)
Pages (from-to)53-69
Number of pages17
JournalClinical Gerontologist
Volume29
Issue number1
DOIs
StatePublished - 2005

Bibliographical note

Funding Information:
This project was supported by a grant from the National Institute for Nursing Research, NR 04517.

Keywords

  • Caregiver distress
  • Dementia
  • Family caregiver
  • Psychoeducation

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