Parent-perceived Facilitators in the Transition of Care for Young Adult Survivors of Childhood Cancer

Amanda DiNofia, Kate Shafer, Katarina Steacy, Karim Thomas Sadak

Research output: Contribution to journalArticlepeer-review

3 Scopus citations

Abstract

Most childhood cancer survivors need life-long care with specialized late-effects surveillance and screening. As these children age into adulthood, it is imperative to continue their survivor-focused care. To do so, health care systems must be prepared to care for this growing and aging population. This includes creating models of care that take into account the needs and desires of all key stakeholders: survivors, parents, pediatric providers, and adult providers. This clinical observation describes that parents desire comprehensive and highly accessible survivorship care that promotes survivor independence; yet, they also want to have a central role in their child's survivorship care.

Original languageEnglish (US)
Pages (from-to)e377-e380
JournalJournal of pediatric hematology/oncology
Volume39
Issue number7
DOIs
StatePublished - Jan 1 2017

Keywords

  • cancer
  • childhood
  • survivor
  • transition
  • young-adult

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