Open science in dementia care embedded pragmatic clinical trials

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Few dementia care interventions have been translated to healthcare contexts for those who need them. Embedded pragmatic clinical trials (ePCTs) are one design that can expedite the timeframe of research translation to clinical practice. As the National Institutes of Health (NIH) and other funders commit immense new resources to increasing the nation's capacity to conduct dementia care ePCTs, we call on psychologists to employ their extensive expertise in open science to improve the quality of dementia care ePCTs. This article provides several recommendations to enhance the transparency and reporting rigor of ePCTs in dementia care and other chronic disease contexts. We illustrate these recommendations in the context of a recent pilot pragmatic trial known as the Porchlight Project. Porchlight provided training to volunteers who serve clients and caregivers to help them provide more "dementia capable" support. Notably this trial did not include a special effort to make use of open science practices. We discuss the benefits and costs had the Porchlight Project incorporated open science principles. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

Original languageEnglish (US)
Pages (from-to)51-59
Number of pages9
JournalPsychology and aging
Volume37
Issue number1
DOIs
StatePublished - Feb 1 2022

Bibliographical note

Funding Information:
Research reported in this publication was supported by the National Institute on Aging (NIA) of the National Institutes of Health under award number U54 AG063546 (Principal Investigators/PIs: Vincent Mor, PhD and Susan Mitchell, PhD) and R61AG061903 (PI: Joseph E. Gaugler), the Robert L. Kane Endowed Chair in Long-Term Care and Aging, the Veterans Health Administration Office of Academic Affiliations Advanced Fellowship in Clinical and Health Services Research (TPH 67-000, Allison M. Gustavson), and the Minneapolis Center of Innovation, Center for Care Delivery and Outcomes Research (CIN 13-406, Allison M. Gustavson). The content is solely the responsibility of the authors and does not necessarily represent the position, policy, or official views of the National Institutes of Health, the Department of Veterans Affairs, or the United States Government.

Publisher Copyright:
© 2022 American Psychological Association

Keywords

  • Alzheimer’s disease and alzheimer’s disease-related dementias
  • Embedded pragmatic clinical trials
  • Open science
  • Replicability
  • Replication
  • Humans
  • Dementia/therapy
  • Information Dissemination

PubMed: MeSH publication types

  • Pragmatic Clinical Trial
  • Journal Article

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