This study described co-parenting motivations and quality of co-parenting features for parents of infants with complex congenital heart disease (CCHD), including differences over time by illness severity. Existing transcripts of parenting experience at infant age 1 and 12 months for 23 parent couples were analyzed using directed content analysis. Data were quantitized for additional description. Six co-parenting motivations and five co-parenting features were identified. Two co-parenting motivations had not been previously described: Developing the Co-Parenting Relationship and Maintaining the Couple Relationship. Variability in quality of co-parenting features was evident. However, the majority of parents showed high ratings. Motivations and quality of co-parenting features changed over time and were related to illness severity. Our findings increase the understanding of what parents are working on as a couple to parent an infant with CCHD and the quality of this co-parenting. Several questions for further study are presented.
Bibliographical noteFunding Information:
We gratefully acknowledge the contributions of the parents who participated in this study; staff members of the Herma Heart Center of the Children?s Hospital of Wisconsin; Margarete Sandelowski, PhD, RN, FAAN, for her input on the manuscript; and Mary Krolikowski, MSN, RN, and Kathleen Mussatto, PhD, RN, for their contributions to the project. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was supported with funds from the Herma Heart Center, the Children?s Hospital of Wisconsin; The Children?s Hospital of Wisconsin Foundation; The University of Wisconsin?Madison School of Nursing Florence Blake Fund and the Helen Denne Schulte Fund; the Clinical and Translational Science Award (CTSA) program, through the National Institutes of Health (NIH) National Center for Advancing Translational Sciences (NCATS), Grant UL1TR000427 to the University of Wisconsin-Madison; and the National Institute of Nursing Research, Grant 5R03NR9272-2 to the University of Wisconsin?Madison School of Nursing. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
© 2017, The Author(s) 2017.
- chronic illness
- congenital heart disease