Measuring caregiver activation for health care: Validation of PBH-LCI: D

Tatiana Sadak, Anna Korpak, Soo Borson

Research output: Contribution to journalArticlepeer-review

20 Scopus citations


Improving the quality of health care for individuals living with dementia is a central goal of the National Alzheimer's Plan, and requires the participation of informed family caregivers as active members of the patient's health care team. "Caregiver activation" is an emerging concept for which dementia-specific measures are lacking. We developed and validated a new self-report index of caregiver activation, Partnering for Better Health - Living with Chronic Illness: Dementia (PBH-LCI:D). PBH-LCI:D has high content validity and good internal consistency and test-retest reliability, with 32 items and a strong six-factor structure reflecting all major health care domains of dementia caregiving. Comparisons with measures of related constructs and potential caregiver and patient predictors of activation indicate that PBH-LCI:D measures a unique construct and therefore should be useful as a marker of caregiver needs for education and behavioral change coaching, and as the foundation for developing interventions to enhance caregiver activation and successful partnership with clinicians.

Original languageEnglish (US)
Pages (from-to)284-292
Number of pages9
JournalGeriatric Nursing
Issue number4
StatePublished - Jul 1 2015

Bibliographical note

Funding Information:
Disclosure: Funded by the National Hartford Centers of Gerontological Nursing Excellence and the Robert Wood Johnson Foundation Nurse Faculty Scholars Fellowship. Feature Article

Publisher Copyright:
© 2015 Elsevier Inc.


  • Caregiver activation
  • Dementia caregiving
  • Partnership in health care
  • Self-management


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