Managing Your Loved One’s Health: Development of a New Care Management Measure for Dementia Family Caregivers

Tatiana Sadak, Jacob Wright, Soo Borson

Research output: Contribution to journalArticlepeer-review

10 Scopus citations

Abstract

The National Alzheimer’s Plan calls for improving health care for people living with dementia and supporting their caregivers as capable health care partners. Clinically useful measurement tools are needed to monitor caregivers’ knowledge and skills for managing patients’ often complex health care needs as well as their own self-care. We created and validated a comprehensive, caregiver-centered measure, Managing Your Loved One’s Health (MYLOH), based on a core set of health care management domains endorsed by both providers and caregivers. In this article, we describe its development and preliminary cultural tailoring. MYLOH is a questionnaire containing 29 items, grouped into six domains, which requires <20 min to complete. MYLOH can be used to guide conversations between clinicians and caregivers around health care management of people with dementia, as the basis for targeted health care coaching, and as an outcome measure in comprehensive dementia care management interventions.

Original languageEnglish (US)
Pages (from-to)620-643
Number of pages24
JournalJournal of Applied Gerontology
Volume37
Issue number5
DOIs
StatePublished - May 1 2018

Bibliographical note

Funding Information:
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Funding for this work was provided by the John A Hartford and the Robert Wood Johnson Foundations.

Publisher Copyright:
© 2016, © The Author(s) 2016.

Copyright:
Copyright 2018 Elsevier B.V., All rights reserved.

Keywords

  • MYLOH
  • Managing Your Loved One’s Health
  • PBH-LCI:D
  • Partnering for Better Health–Living With Chronic Illness: Dementia
  • activation
  • complex illness
  • engagement
  • multimorbidity

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