Making rheumtogrow: The rationale and framework for an internet based health care transition intervention

Peter B Scal, Ann E Garwick, Keith J Horvath

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Programs to support youth with chronic conditions as they transition to adulthood and from pediatric to adult healthcare are being developed and disseminated. Yet the evidence base to support these programs is generally lacking. In response to the need for theoretically grounded youth focused programs we developed Rheumtogrow.org, an internet based health care transition intervention for youth with Juvenile Arthritis. Guided by Self-Determination Theory and developed through a user centered and participatory process, this intervention seeks to increase the likelihood that youth with arthritis will engage in behaviors that reduce the impact that arthritis has on their lives across multiple domains. Key intervention components support Self Determination Theory constructs of autonomy, competence and relatedness through interactive activities that include opportunities for self-monitoring and reflection, youth-to-youth information sharing and social support, and accurate, accessible and developmentally targeted health and arthritis specific information. Rheumtogrow.org has been developed to be tested by matching existing evidence, theory, intervention strategies and evaluation measures. A usability and feasibility study is now being conducted.

Original languageEnglish (US)
Title of host publicationTransition from pediatric to adult medical care
PublisherNova Science Publishers, Inc.
Pages107-119
Number of pages13
ISBN (Electronic)9781620814123
ISBN (Print)9781620814093
StatePublished - Jan 1 2012

Fingerprint

Patient Transfer
Internet
Arthritis
Personal Autonomy
Juvenile Arthritis
Information Dissemination
Feasibility Studies
Social Support
Mental Competency
Pediatrics
Delivery of Health Care
Health

Cite this

Scal, P. B., Garwick, A. E., & Horvath, K. J. (2012). Making rheumtogrow: The rationale and framework for an internet based health care transition intervention. In Transition from pediatric to adult medical care (pp. 107-119). Nova Science Publishers, Inc..

Making rheumtogrow : The rationale and framework for an internet based health care transition intervention. / Scal, Peter B; Garwick, Ann E; Horvath, Keith J.

Transition from pediatric to adult medical care. Nova Science Publishers, Inc., 2012. p. 107-119.

Research output: Chapter in Book/Report/Conference proceedingChapter

Scal, PB, Garwick, AE & Horvath, KJ 2012, Making rheumtogrow: The rationale and framework for an internet based health care transition intervention. in Transition from pediatric to adult medical care. Nova Science Publishers, Inc., pp. 107-119.
Scal PB, Garwick AE, Horvath KJ. Making rheumtogrow: The rationale and framework for an internet based health care transition intervention. In Transition from pediatric to adult medical care. Nova Science Publishers, Inc. 2012. p. 107-119
Scal, Peter B ; Garwick, Ann E ; Horvath, Keith J. / Making rheumtogrow : The rationale and framework for an internet based health care transition intervention. Transition from pediatric to adult medical care. Nova Science Publishers, Inc., 2012. pp. 107-119
@inbook{bb0936bc16f74522be257527520cfca0,
title = "Making rheumtogrow: The rationale and framework for an internet based health care transition intervention",
abstract = "Programs to support youth with chronic conditions as they transition to adulthood and from pediatric to adult healthcare are being developed and disseminated. Yet the evidence base to support these programs is generally lacking. In response to the need for theoretically grounded youth focused programs we developed Rheumtogrow.org, an internet based health care transition intervention for youth with Juvenile Arthritis. Guided by Self-Determination Theory and developed through a user centered and participatory process, this intervention seeks to increase the likelihood that youth with arthritis will engage in behaviors that reduce the impact that arthritis has on their lives across multiple domains. Key intervention components support Self Determination Theory constructs of autonomy, competence and relatedness through interactive activities that include opportunities for self-monitoring and reflection, youth-to-youth information sharing and social support, and accurate, accessible and developmentally targeted health and arthritis specific information. Rheumtogrow.org has been developed to be tested by matching existing evidence, theory, intervention strategies and evaluation measures. A usability and feasibility study is now being conducted.",
author = "Scal, {Peter B} and Garwick, {Ann E} and Horvath, {Keith J}",
year = "2012",
month = "1",
day = "1",
language = "English (US)",
isbn = "9781620814093",
pages = "107--119",
booktitle = "Transition from pediatric to adult medical care",
publisher = "Nova Science Publishers, Inc.",

}

TY - CHAP

T1 - Making rheumtogrow

T2 - The rationale and framework for an internet based health care transition intervention

AU - Scal, Peter B

AU - Garwick, Ann E

AU - Horvath, Keith J

PY - 2012/1/1

Y1 - 2012/1/1

N2 - Programs to support youth with chronic conditions as they transition to adulthood and from pediatric to adult healthcare are being developed and disseminated. Yet the evidence base to support these programs is generally lacking. In response to the need for theoretically grounded youth focused programs we developed Rheumtogrow.org, an internet based health care transition intervention for youth with Juvenile Arthritis. Guided by Self-Determination Theory and developed through a user centered and participatory process, this intervention seeks to increase the likelihood that youth with arthritis will engage in behaviors that reduce the impact that arthritis has on their lives across multiple domains. Key intervention components support Self Determination Theory constructs of autonomy, competence and relatedness through interactive activities that include opportunities for self-monitoring and reflection, youth-to-youth information sharing and social support, and accurate, accessible and developmentally targeted health and arthritis specific information. Rheumtogrow.org has been developed to be tested by matching existing evidence, theory, intervention strategies and evaluation measures. A usability and feasibility study is now being conducted.

AB - Programs to support youth with chronic conditions as they transition to adulthood and from pediatric to adult healthcare are being developed and disseminated. Yet the evidence base to support these programs is generally lacking. In response to the need for theoretically grounded youth focused programs we developed Rheumtogrow.org, an internet based health care transition intervention for youth with Juvenile Arthritis. Guided by Self-Determination Theory and developed through a user centered and participatory process, this intervention seeks to increase the likelihood that youth with arthritis will engage in behaviors that reduce the impact that arthritis has on their lives across multiple domains. Key intervention components support Self Determination Theory constructs of autonomy, competence and relatedness through interactive activities that include opportunities for self-monitoring and reflection, youth-to-youth information sharing and social support, and accurate, accessible and developmentally targeted health and arthritis specific information. Rheumtogrow.org has been developed to be tested by matching existing evidence, theory, intervention strategies and evaluation measures. A usability and feasibility study is now being conducted.

UR - http://www.scopus.com/inward/record.url?scp=85060371390&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85060371390&partnerID=8YFLogxK

M3 - Chapter

AN - SCOPUS:85060371390

SN - 9781620814093

SP - 107

EP - 119

BT - Transition from pediatric to adult medical care

PB - Nova Science Publishers, Inc.

ER -