“Making My Own Decisions Sometimes”: A Pilot Study of Young Adult Cancer Survivors’ Perspectives on Medical Decision-Making

L. Aubree Shay, Susanne Schmidt, Stephanie D. Cornell, Helen M. Parsons

Research output: Contribution to journalArticlepeer-review

4 Scopus citations

Abstract

This study aimed to provide a better understanding of the medical decision-making preferences and experiences of young adult survivors of pediatric, adolescent, and young adult cancers. We conducted key informant interviews and a cross-sectional mailed survey with young adult survivors (currently aged 18–39 years) of pediatric, adolescent, and young adult cancers in South Texas. Of the responding survivors, almost all wanted to be actively involved in medical decision-making, but preferences regarding family and doctor involvement varied. In open-ended responses, the most commonly reported concerns related to medical decision-making were feelings of uncertainty and fear of receiving bad news. Survivors reported that they desired more information in order to feel better about medical decision-making. Due to the variety of preferences regarding decision-making and who to include in the process, physicians should be prepared to ask and accommodate patients regarding their decision-making preferences.

Original languageEnglish (US)
Pages (from-to)1341-1346
Number of pages6
JournalJournal of Cancer Education
Volume33
Issue number6
DOIs
StatePublished - Dec 1 2018

Bibliographical note

Funding Information:
Acknowledgements This research was supported by an Infrastructure Grant from the St. Baldrick’s Foundation. HM Parsons was supported by a National Cancer Institute Cancer Prevention and Control Career Development Award (K07 CA175063). LA Shay was supported by a National Cancer Institute Cancer Education and Career Development Postdoctoral Fellowship Award (R25 CA57712). S Schmidt is supported by the National Center for Advancing Translational Sciences, National Institutes of Health, through Grant KL2 TR001118.

Funding Information:
This research was supported by an Infrastructure Grant from the St. Baldrick?s Foundation. HM Parsons was supported by a National Cancer Institute Cancer Prevention and Control Career Development Award (K07 CA175063). LA Shay was supported by a National Cancer Institute Cancer Education and Career Development Postdoctoral Fellowship Award (R25 CA57712). S Schmidt is supported by the National Center for Advancing Translational Sciences, National Institutes of Health, through Grant KL2 TR001118.

Publisher Copyright:
© 2017, American Association for Cancer Education.

Keywords

  • Adolescent and young adult
  • Cancer survivors
  • Medical decision-making
  • Pilot study

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