Lung transplant referral for individuals with cystic fibrosis

Cystic Fibrosis Foundation consensus guidelines

the CF Lung Transplant Referral Guidelines Committee

Research output: Contribution to journalReview article

2 Citations (Scopus)

Abstract

Objective: Provide recommendations to the cystic fibrosis (CF)community to facilitate timely referral for lung transplantation for individuals with CF. Methods: The CF Foundation organized a multidisciplinary committee to develop CF Lung Transplant Referral Consensus Guidelines. Three workgroups were formed: timing for transplant referral; modifiable barriers to transplant; and transition to transplant care. A focus group of lung transplant recipients with CF and spouses of CF recipients informed guideline development. Results: The committee formulated 21 recommendation statements based on literature review, committee member practices, focus group insights, and in response to public comment. Critical approaches to optimizing access to lung transplant include early discussion of this treatment option, assessment for modifiable barriers to transplant, and open communication between the CF and lung transplant centers. Conclusions: These guidelines will help CF providers counsel their patients and may reduce the number of individuals with CF who die without consideration for lung transplant.

Original languageEnglish (US)
Pages (from-to)321-333
Number of pages13
JournalJournal of Cystic Fibrosis
Volume18
Issue number3
DOIs
StatePublished - May 1 2019

Fingerprint

Cystic Fibrosis
Consensus
Referral and Consultation
Guidelines
Transplants
Lung
Focus Groups
Committee Membership
Lung Transplantation
Advisory Committees
Spouses
Communication

Keywords

  • Advanced lung disease
  • Communication
  • Lung transplant
  • Modifiable barriers
  • Referral
  • Transplant

PubMed: MeSH publication types

  • Journal Article
  • Review

Cite this

Lung transplant referral for individuals with cystic fibrosis : Cystic Fibrosis Foundation consensus guidelines. / the CF Lung Transplant Referral Guidelines Committee.

In: Journal of Cystic Fibrosis, Vol. 18, No. 3, 01.05.2019, p. 321-333.

Research output: Contribution to journalReview article

the CF Lung Transplant Referral Guidelines Committee. / Lung transplant referral for individuals with cystic fibrosis : Cystic Fibrosis Foundation consensus guidelines. In: Journal of Cystic Fibrosis. 2019 ; Vol. 18, No. 3. pp. 321-333.
@article{cb394b8cff2d4181954d2d4f12c79197,
title = "Lung transplant referral for individuals with cystic fibrosis: Cystic Fibrosis Foundation consensus guidelines",
abstract = "Objective: Provide recommendations to the cystic fibrosis (CF)community to facilitate timely referral for lung transplantation for individuals with CF. Methods: The CF Foundation organized a multidisciplinary committee to develop CF Lung Transplant Referral Consensus Guidelines. Three workgroups were formed: timing for transplant referral; modifiable barriers to transplant; and transition to transplant care. A focus group of lung transplant recipients with CF and spouses of CF recipients informed guideline development. Results: The committee formulated 21 recommendation statements based on literature review, committee member practices, focus group insights, and in response to public comment. Critical approaches to optimizing access to lung transplant include early discussion of this treatment option, assessment for modifiable barriers to transplant, and open communication between the CF and lung transplant centers. Conclusions: These guidelines will help CF providers counsel their patients and may reduce the number of individuals with CF who die without consideration for lung transplant.",
keywords = "Advanced lung disease, Communication, Lung transplant, Modifiable barriers, Referral, Transplant",
author = "{the CF Lung Transplant Referral Guidelines Committee} and Ramos, {Kathleen J.} and Smith, {Patrick J.} and McKone, {Edward F.} and Pilewski, {Joseph M.} and Amy Lucy and Hempstead, {Sarah E.} and Erin Tallarico and Albert Faro and Rosenbluth, {Daniel B.} and Gray, {Alice L.} and Dunitz, {Jordan M}",
year = "2019",
month = "5",
day = "1",
doi = "10.1016/j.jcf.2019.03.002",
language = "English (US)",
volume = "18",
pages = "321--333",
journal = "Journal of Cystic Fibrosis",
issn = "1569-1993",
publisher = "Elsevier",
number = "3",

}

TY - JOUR

T1 - Lung transplant referral for individuals with cystic fibrosis

T2 - Cystic Fibrosis Foundation consensus guidelines

AU - the CF Lung Transplant Referral Guidelines Committee

AU - Ramos, Kathleen J.

AU - Smith, Patrick J.

AU - McKone, Edward F.

AU - Pilewski, Joseph M.

AU - Lucy, Amy

AU - Hempstead, Sarah E.

AU - Tallarico, Erin

AU - Faro, Albert

AU - Rosenbluth, Daniel B.

AU - Gray, Alice L.

AU - Dunitz, Jordan M

PY - 2019/5/1

Y1 - 2019/5/1

N2 - Objective: Provide recommendations to the cystic fibrosis (CF)community to facilitate timely referral for lung transplantation for individuals with CF. Methods: The CF Foundation organized a multidisciplinary committee to develop CF Lung Transplant Referral Consensus Guidelines. Three workgroups were formed: timing for transplant referral; modifiable barriers to transplant; and transition to transplant care. A focus group of lung transplant recipients with CF and spouses of CF recipients informed guideline development. Results: The committee formulated 21 recommendation statements based on literature review, committee member practices, focus group insights, and in response to public comment. Critical approaches to optimizing access to lung transplant include early discussion of this treatment option, assessment for modifiable barriers to transplant, and open communication between the CF and lung transplant centers. Conclusions: These guidelines will help CF providers counsel their patients and may reduce the number of individuals with CF who die without consideration for lung transplant.

AB - Objective: Provide recommendations to the cystic fibrosis (CF)community to facilitate timely referral for lung transplantation for individuals with CF. Methods: The CF Foundation organized a multidisciplinary committee to develop CF Lung Transplant Referral Consensus Guidelines. Three workgroups were formed: timing for transplant referral; modifiable barriers to transplant; and transition to transplant care. A focus group of lung transplant recipients with CF and spouses of CF recipients informed guideline development. Results: The committee formulated 21 recommendation statements based on literature review, committee member practices, focus group insights, and in response to public comment. Critical approaches to optimizing access to lung transplant include early discussion of this treatment option, assessment for modifiable barriers to transplant, and open communication between the CF and lung transplant centers. Conclusions: These guidelines will help CF providers counsel their patients and may reduce the number of individuals with CF who die without consideration for lung transplant.

KW - Advanced lung disease

KW - Communication

KW - Lung transplant

KW - Modifiable barriers

KW - Referral

KW - Transplant

UR - http://www.scopus.com/inward/record.url?scp=85063321815&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85063321815&partnerID=8YFLogxK

U2 - 10.1016/j.jcf.2019.03.002

DO - 10.1016/j.jcf.2019.03.002

M3 - Review article

VL - 18

SP - 321

EP - 333

JO - Journal of Cystic Fibrosis

JF - Journal of Cystic Fibrosis

SN - 1569-1993

IS - 3

ER -