Integration of hematopoietic cell transplantation outcomes data: Data standards are not enough

Robinette Renner, John V Carlis, Martin Maiers, J. Douglas Rizzo, Colleen O’Neill, Mary Horowitz, Katherine Gee, Dennis Confer

Research output: Chapter in Book/Report/Conference proceedingConference contribution

2 Scopus citations

Abstract

To complete large-scale clinical research, organizations must share data. Because institutional database schemas are inherently heterogeneous, they need a standard metadata representation in order to exchange and combine data for multi-center research. The AGNIS application (A Growable Network Information System) facilitates the exchange of hematopoietic cell transplantation outcomes data using data standards. However, adoption rates remain low due to a significant mapping burden. The AGNIS experience shows that developing a data standard is not enough. Tools and resources are needed to facilitate utilization of the standard.

Original languageEnglish (US)
Title of host publicationData Integration in the Life Sciences - 11th International Conference, DILS 2015, Proceedings
EditorsJose-Luis Ambite, Ashish N. Naveen
PublisherSpringer- Verlag
Pages139-146
Number of pages8
ISBN (Print)9783319218427
DOIs
StatePublished - Jan 1 2015
Event11th International Conference on Data Integration in the Life Sciences, DILS 2015 - Los Angeles, United States
Duration: Jul 9 2015Jul 10 2015

Publication series

NameLecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
Volume9162
ISSN (Print)0302-9743
ISSN (Electronic)1611-3349

Other

Other11th International Conference on Data Integration in the Life Sciences, DILS 2015
CountryUnited States
CityLos Angeles
Period7/9/157/10/15

Keywords

  • Data integration
  • Data standards
  • Hematopoietic cell transplant outcomes data
  • Interoperability

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