Integration of hematopoietic cell transplantation outcomes data: Data standards are not enough

Robinette Renner; John V Carlis; Martin Maiers; J. Douglas Rizzo; Colleen O’Neill; Mary Horowitz; Katherine Gee; Dennis Confer

doi:10.1007/978-3-319-21843-4_11

Integration of hematopoietic cell transplantation outcomes data: Data standards are not enough

Robinette Renner, John V Carlis, Martin Maiers, J. Douglas Rizzo, Colleen O’Neill, Mary Horowitz, Katherine Gee, Dennis Confer

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

2 Scopus citations

Abstract

To complete large-scale clinical research, organizations must share data. Because institutional database schemas are inherently heterogeneous, they need a standard metadata representation in order to exchange and combine data for multi-center research. The AGNIS application (A Growable Network Information System) facilitates the exchange of hematopoietic cell transplantation outcomes data using data standards. However, adoption rates remain low due to a significant mapping burden. The AGNIS experience shows that developing a data standard is not enough. Tools and resources are needed to facilitate utilization of the standard.

Original language	English (US)
Title of host publication	Data Integration in the Life Sciences - 11th International Conference, DILS 2015, Proceedings
Editors	Jose-Luis Ambite, Ashish N. Naveen
Publisher	Springer Verlag
Pages	139-146
Number of pages	8
ISBN (Print)	9783319218427
DOIs	https://doi.org/10.1007/978-3-319-21843-4_11
State	Published - 2015
Event	11th International Conference on Data Integration in the Life Sciences, DILS 2015 - Los Angeles, United States Duration: Jul 9 2015 → Jul 10 2015

Publication series

Name	Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
Volume	9162
ISSN (Print)	0302-9743
ISSN (Electronic)	1611-3349

Other

Other	11th International Conference on Data Integration in the Life Sciences, DILS 2015
Country/Territory	United States
City	Los Angeles
Period	7/9/15 → 7/10/15

Bibliographical note

Funding Information:
Support for this project was partially provided by contract ADB. No. N01-HC-45215 / HHSN268200425215C from the National Heart, Lung, and Blood Institute and the NMDP. Thanks are extended to all who reviewed the document and provided their thoughtful feedback. In addition, Kirt Schaper, Bridget Wakaruk, and Tony Wirth helped calculate the metrics gathered here.

Publisher Copyright:
© Springer International Publishing Switzerland 2015.

Keywords

Data integration
Data standards
Hematopoietic cell transplant outcomes data
Interoperability

Publisher link

10.1007/978-3-319-21843-4_11

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Renner, R., Carlis, J. V., Maiers, M., Rizzo, J. D., O’Neill, C., Horowitz, M., Gee, K., & Confer, D. (2015). Integration of hematopoietic cell transplantation outcomes data: Data standards are not enough. In J-L. Ambite, & A. N. Naveen (Eds.), Data Integration in the Life Sciences - 11th International Conference, DILS 2015, Proceedings (pp. 139-146). (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); Vol. 9162). Springer Verlag. https://doi.org/10.1007/978-3-319-21843-4_11

Integration of hematopoietic cell transplantation outcomes data: Data standards are not enough. / Renner, Robinette; Carlis, John V; Maiers, Martin et al.
Data Integration in the Life Sciences - 11th International Conference, DILS 2015, Proceedings. ed. / Jose-Luis Ambite; Ashish N. Naveen. Springer Verlag, 2015. p. 139-146 (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); Vol. 9162).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

Renner, R, Carlis, JV, Maiers, M, Rizzo, JD, O’Neill, C, Horowitz, M, Gee, K & Confer, D 2015, Integration of hematopoietic cell transplantation outcomes data: Data standards are not enough. in J-L Ambite & AN Naveen (eds), Data Integration in the Life Sciences - 11th International Conference, DILS 2015, Proceedings. Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics), vol. 9162, Springer Verlag, pp. 139-146, 11th International Conference on Data Integration in the Life Sciences, DILS 2015, Los Angeles, United States, 7/9/15. https://doi.org/10.1007/978-3-319-21843-4_11

Renner R, Carlis JV, Maiers M, Rizzo JD, O’Neill C, Horowitz M et al. Integration of hematopoietic cell transplantation outcomes data: Data standards are not enough. In Ambite J-L, Naveen AN, editors, Data Integration in the Life Sciences - 11th International Conference, DILS 2015, Proceedings. Springer Verlag. 2015. p. 139-146. (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)). doi: 10.1007/978-3-319-21843-4_11

Renner, Robinette ; Carlis, John V ; Maiers, Martin et al. / Integration of hematopoietic cell transplantation outcomes data : Data standards are not enough. Data Integration in the Life Sciences - 11th International Conference, DILS 2015, Proceedings. editor / Jose-Luis Ambite ; Ashish N. Naveen. Springer Verlag, 2015. pp. 139-146 (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)).

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Integration of hematopoietic cell transplantation outcomes data: Data standards are not enough

Abstract

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