Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics

for the LawSeq Framework Task Force

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

Human genomics is a translational field spanning research, clinical care, public health, and direct-to-consumer testing. However, law differs across these domains on issues including liability, consent, promoting quality of analysis and interpretation, and safeguarding privacy. Genomic activities crossing domains can thus encounter confusion and conflicts among these approaches. This paper suggests how to resolve these conflicts while protecting the rights and interests of individuals sequenced. Translational genomics requires this more translational approach to law.

Original languageEnglish (US)
Pages (from-to)69-86
Number of pages18
JournalJournal of Law, Medicine and Ethics
Volume48
Issue number1
DOIs
StatePublished - Mar 1 2020

PubMed: MeSH publication types

  • Journal Article
  • Research Support, N.I.H., Extramural

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