The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.
|Original language||English (US)|
|Number of pages||4|
|Journal||Journal of the American Medical Informatics Association|
|State||Published - Aug 13 2021|
Bibliographical notePublisher Copyright:
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- citizen science
- health equity
- health informatics
- patient engagement
- precision health