Abstract
The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 2009-2012 |
| Number of pages | 4 |
| Journal | Journal of the American Medical Informatics Association |
| Volume | 28 |
| Issue number | 9 |
| DOIs | |
| State | Published - Aug 13 2021 |
Bibliographical note
Publisher Copyright:© 2021 Oxford University Press. All rights reserved.
Keywords
- citizen science
- health equity
- health informatics
- patient engagement
- precision health