Informatics-enabled citizen science to advance health equity

Rupa S. Valdez, Don E. Detmer, Philip Bourne, Katherine K. Kim, Robin Austin, Anna McCollister, Courtney C. Rogers, Karen C. Waters-Wicks

Research output: Contribution to journalArticlepeer-review

2 Scopus citations


The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.

Original languageEnglish (US)
Pages (from-to)2009-2012
Number of pages4
JournalJournal of the American Medical Informatics Association
Issue number9
StatePublished - Aug 13 2021

Bibliographical note

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  • citizen science
  • health equity
  • health informatics
  • patient engagement
  • precision health


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