“In Eight Minutes We Talked More About Our Goals, Relationship, Than We Have in Years”: A Pilot of Patient–Caregiver Discussions in a Neuro-Oncology Clinic

Dana Ketcher, Lee Ellington, Brian R.W. Baucom, Margaret F. Clayton, Maija Reblin

Research output: Contribution to journalArticlepeer-review

2 Scopus citations

Abstract

Primary brain cancer is a diagnosis that can have drastic health impacts on patient and caregiver alike. In high-stress situations, dyadic coping can improve psychosocial and health outcomes and communication about personal life goals maybe one way to facilitate this coping. In this study, we describe the feasibility and accessibility of a one-time, self-directed goal discussion pilot intervention for neuro-oncology patients and their primary caregivers. Ten dyads were taken to a private room to complete a pre-discussion questionnaire, a worksheet to elicit personal goals, complete an 8-min discussion of goals, a post-discussion questionnaire, and provided open-ended feedback about the process. Post-discussion, dyads reported that the intervention was not stressful. In open-ended feedback, dyads overwhelmingly reported that the intervention was a positive experience, providing a safe, calm environment to have difficult conversations. This intervention provides a positive framework for improving communication and discussion of goals between patient–caregiver dyads.

Original languageEnglish (US)
Pages (from-to)126-137
Number of pages12
JournalJournal of Family Nursing
Volume26
Issue number2
DOIs
StatePublished - May 1 2020
Externally publishedYes

Bibliographical note

Funding Information:
The authors are very grateful to the family members and patients who contributed their time for this research. We would like to acknowledge the expertise and support of Dr. Peter Forsyth, faculty, and staff in the neuro-oncology clinic at Moffitt Cancer Center in Tampa, Florida. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by ACS (MRSG 13-234-01-PCSM; PI Reblin).

Funding Information:
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by ACS (MRSG 13-234-01-PCSM; PI Reblin).

Publisher Copyright:
© The Author(s) 2020.

Keywords

  • brain cancer
  • dyadic coping
  • family caregivers
  • family intervention
  • goals

PubMed: MeSH publication types

  • Journal Article
  • Research Support, Non-U.S. Gov't

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