Abstract
Legally and ethically, researchers are required to ensure laypeople understand the informed consent process. Characteristics of the potential participants, their situation, and the study have been shown to affect laypeople's understanding. We propose a seven-step design-for-understanding approach to the development of an understandable informed consent document. Results from application of the approach to a large bioinformatics field study, HeartCare II, are provided.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 1160 |
| Number of pages | 1 |
| Journal | AMIA ... Annual Symposium proceedings / AMIA Symposium. AMIA Symposium |
| State | Published - 2008 |
| Externally published | Yes |
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