Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative study of survivorship providers

Karim T Sadak, Joseph P Neglia, David R. Freyer, Eileen M Harwood

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Background: Long-term survival in childhood cancer is excellent. Most survivors will have a therapy-related chronic condition, yet very few receive survivor-focused care as they transition from adolescence to young adulthood. The purpose of this study is to identify indicators of success in current transitional care practices for young adult survivors of childhood cancer as defined by all members of survivorship care teams. Procedure: An exploratory, phenomenologic qualitative study was conducted with key informants from medical teams involved in transitional care of childhood cancer survivors. Data were collected through phone interviews with providers from both pediatric and adult care settings. Results: A multidisciplinary study sample of 29 participants from three institutions identified two major themes with multiple subthemes. The first major theme was that providers must be good communicators, and it emphasized the importance of having good relationships throughout the transition of care to optimize effective communication. The second major theme was that models of care must include well-established partners throughout the healthcare system that promote accessible subspecialty care with streamlined referrals and patient navigation services. Conclusions: From the perspective of experienced pediatric- and adult-centered providers at three different institutions delivering life-long transitional care for childhood cancer survivors, the optimal model of care must be built around facilitating communication among all key stakeholders and emphasizing patient-friendly services that minimize patient stressors.

Original languageEnglish (US)
Article numbere26587
JournalPediatric Blood and Cancer
Volume64
Issue number11
DOIs
StatePublished - Nov 1 2017

Fingerprint

Survivors
Survival Rate
Patient Transfer
Neoplasms
Patient Navigation
Communication
Pediatrics
Young Adult
Referral and Consultation
Transitional Care
Interviews
Delivery of Health Care
Survival
Therapeutics

Keywords

  • qualitative
  • survivor
  • transition

PubMed: MeSH publication types

  • Journal Article

Cite this

Identifying metrics of success for transitional care practices in childhood cancer survivorship : A qualitative study of survivorship providers. / Sadak, Karim T; Neglia, Joseph P; Freyer, David R.; Harwood, Eileen M.

In: Pediatric Blood and Cancer, Vol. 64, No. 11, e26587, 01.11.2017.

Research output: Contribution to journalArticle

@article{484ce74daeda4ab9b45d71eaf318bcb0,
title = "Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative study of survivorship providers",
abstract = "Background: Long-term survival in childhood cancer is excellent. Most survivors will have a therapy-related chronic condition, yet very few receive survivor-focused care as they transition from adolescence to young adulthood. The purpose of this study is to identify indicators of success in current transitional care practices for young adult survivors of childhood cancer as defined by all members of survivorship care teams. Procedure: An exploratory, phenomenologic qualitative study was conducted with key informants from medical teams involved in transitional care of childhood cancer survivors. Data were collected through phone interviews with providers from both pediatric and adult care settings. Results: A multidisciplinary study sample of 29 participants from three institutions identified two major themes with multiple subthemes. The first major theme was that providers must be good communicators, and it emphasized the importance of having good relationships throughout the transition of care to optimize effective communication. The second major theme was that models of care must include well-established partners throughout the healthcare system that promote accessible subspecialty care with streamlined referrals and patient navigation services. Conclusions: From the perspective of experienced pediatric- and adult-centered providers at three different institutions delivering life-long transitional care for childhood cancer survivors, the optimal model of care must be built around facilitating communication among all key stakeholders and emphasizing patient-friendly services that minimize patient stressors.",
keywords = "qualitative, survivor, transition",
author = "Sadak, {Karim T} and Neglia, {Joseph P} and Freyer, {David R.} and Harwood, {Eileen M}",
year = "2017",
month = "11",
day = "1",
doi = "10.1002/pbc.26587",
language = "English (US)",
volume = "64",
journal = "Pediatric Blood and Cancer",
issn = "1545-5009",
publisher = "Wiley-Liss Inc.",
number = "11",

}

TY - JOUR

T1 - Identifying metrics of success for transitional care practices in childhood cancer survivorship

T2 - A qualitative study of survivorship providers

AU - Sadak, Karim T

AU - Neglia, Joseph P

AU - Freyer, David R.

AU - Harwood, Eileen M

PY - 2017/11/1

Y1 - 2017/11/1

N2 - Background: Long-term survival in childhood cancer is excellent. Most survivors will have a therapy-related chronic condition, yet very few receive survivor-focused care as they transition from adolescence to young adulthood. The purpose of this study is to identify indicators of success in current transitional care practices for young adult survivors of childhood cancer as defined by all members of survivorship care teams. Procedure: An exploratory, phenomenologic qualitative study was conducted with key informants from medical teams involved in transitional care of childhood cancer survivors. Data were collected through phone interviews with providers from both pediatric and adult care settings. Results: A multidisciplinary study sample of 29 participants from three institutions identified two major themes with multiple subthemes. The first major theme was that providers must be good communicators, and it emphasized the importance of having good relationships throughout the transition of care to optimize effective communication. The second major theme was that models of care must include well-established partners throughout the healthcare system that promote accessible subspecialty care with streamlined referrals and patient navigation services. Conclusions: From the perspective of experienced pediatric- and adult-centered providers at three different institutions delivering life-long transitional care for childhood cancer survivors, the optimal model of care must be built around facilitating communication among all key stakeholders and emphasizing patient-friendly services that minimize patient stressors.

AB - Background: Long-term survival in childhood cancer is excellent. Most survivors will have a therapy-related chronic condition, yet very few receive survivor-focused care as they transition from adolescence to young adulthood. The purpose of this study is to identify indicators of success in current transitional care practices for young adult survivors of childhood cancer as defined by all members of survivorship care teams. Procedure: An exploratory, phenomenologic qualitative study was conducted with key informants from medical teams involved in transitional care of childhood cancer survivors. Data were collected through phone interviews with providers from both pediatric and adult care settings. Results: A multidisciplinary study sample of 29 participants from three institutions identified two major themes with multiple subthemes. The first major theme was that providers must be good communicators, and it emphasized the importance of having good relationships throughout the transition of care to optimize effective communication. The second major theme was that models of care must include well-established partners throughout the healthcare system that promote accessible subspecialty care with streamlined referrals and patient navigation services. Conclusions: From the perspective of experienced pediatric- and adult-centered providers at three different institutions delivering life-long transitional care for childhood cancer survivors, the optimal model of care must be built around facilitating communication among all key stakeholders and emphasizing patient-friendly services that minimize patient stressors.

KW - qualitative

KW - survivor

KW - transition

UR - http://www.scopus.com/inward/record.url?scp=85019769924&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85019769924&partnerID=8YFLogxK

U2 - 10.1002/pbc.26587

DO - 10.1002/pbc.26587

M3 - Article

C2 - 28557375

AN - SCOPUS:85019769924

VL - 64

JO - Pediatric Blood and Cancer

JF - Pediatric Blood and Cancer

SN - 1545-5009

IS - 11

M1 - e26587

ER -