Feasibility, usability, and acceptability of personalized web-based assessment of social network and daily social support interactions over time

Maija Reblin, Rachael McCormick, Kelly J. Mansfield, Sarah E. Wawrzynski, Dana Ketcher, Karrin E. Tennant, Jia Wen Guo, Eric C. Jones, Kristin G. Cloyes

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Purpose: The purpose of this study was to test the feasibility, usability, and acceptability of implementing a web-based method for collecting social network and longitudinal daily interaction data from cancer survivors and their caregivers. Methods: Young adult and sexual/gender minority cancer survivors and their informal caregivers were recruited as dyads. Feasibility data, including enrollment and retention, were captured. Individual social network data were collected at baseline and used to individualize daily electronically delivered surveys assessing characteristics of daily social support-related interactions with identified network members for 14 days. Follow-up questionnaires assessing usability and exit interviews assessing acceptability were completed at the end of the 2-week study period. Results: Fourteen survivor-caregiver dyads (28 individual participants) were enrolled and completed all baseline and final measures. Participants completed 85.2% of daily diary reports and reported excellent usability ratings. Acceptability was also high. In qualitative interviews, participants reported enjoying the daily reflection on social support facilitated by our methods. Conclusions: Our method has been shown to be highly feasible, usable, and acceptable. Implications for Cancer Survivors: Developing better data collection tools can lead to better understanding of the social support cancer survivors and their caregivers receive, and how the social network structure facilitates or creates barriers to accessing this support.

Original languageEnglish (US)
JournalJournal of Cancer Survivorship
DOIs
StateAccepted/In press - 2022
Externally publishedYes

Bibliographical note

Funding Information:
Dick and Tammy Burton Foundation Pilot Grant Award, University of Utah College of Nursing. Moffitt Cancer Center Adolescent and Young Adult Program with support from Swim Across America and the Bay Area Advisors.

Funding Information:
The REDCap application reported in this publication was supported in part by the National Center for Advancing Translational Sciences of the National Institutes of Health under Award Number UL1TR001067 for period 5/1/13–3/30/18 and UL1TR002538 for period 4/1/18–2/28/23.

Publisher Copyright:
© 2021, The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

Keywords

  • Young adult; Sexual and gender minorities; Feasibility studies; Cancer survivors; Caregivers; Social support

PubMed: MeSH publication types

  • Journal Article

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