Family Perceptions of Living with Alzheimer's Disease

Ann E Garwick, DANIEL DETZNER, Pauline E Boss

Research output: Contribution to journalArticlepeer-review

47 Scopus citations


The purpose of this study was to identify the major themes that 38 multigenerational families emphasized in their conversations about living with Alzheimer's disease. Interviews were conducted with families that were providing home care in the early stages of the disease. Family perceptions were analyzed with the aid of a computer content analysis program. Families emphasized four themes: (a) the awareness that something was “wrong”; (b) the uncertain nature of the diagnosis; (c) excluding a family member; and (d) the ambiguous nature of family life with Alzheimer's disease.

Original languageEnglish (US)
Pages (from-to)327-340
Number of pages14
JournalFamily process
Issue number3
StatePublished - Sep 1994


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