Families of individuals with intellectual and developmental disabilities: Policy, funding, services, and experiences

Amy Hewitt, John Agosta, Tamar Heller, Ann Cameron Williams, Jennifer Reinke

Research output: Contribution to journalArticlepeer-review

34 Scopus citations

Abstract

Families are critical in the provision of lifelong support to individuals with intellectual and developmental disabilities (IDD). Today, more people with IDD receive long-term services and supports while living with their families. Thus, it is important that researchers, practitioners, and policy makers understand how to best support families who provide at-home support to children and adults with IDD. This article summarizes (a) the status of research regarding the support of families who provide support at home to individuals with IDD, (b) present points of concern regarding supports for these families, and (c) associated future research priorities related to supporting families.

Original languageEnglish (US)
Pages (from-to)349-359
Number of pages11
JournalIntellectual and developmental disabilities
Volume51
Issue number5
DOIs
StatePublished - Oct 2013

Keywords

  • Employment
  • Families
  • Family support
  • Intellectual and developmental disabilities
  • Siblings

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