Families of children with autism spectrum disorder: The role of family-centered care in perceived family challenges

Jennifer S. Reinke, Catherine A. Solheim

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Purpose – Using Andersen’s (1968) behavioral model of health services use as a guiding conceptual framework, this study examined how receipt of family-centered care relates to the perceived family challenges for families of children with autism spectrum disorder (ASD). Design – Data from the 2009–2010 National Survey of Children with Special Health Care Needs (NS-CSHCN) were analyzed for 812 parents of children with ASD. Findings – Multiple regression analyses provided substantive statistical evidence that a child’s race, the adequacy of a family’s insurance, and the stability of child’s health care needs significantly contributed to predicting his or her receipt of family-centered care. Further results suggested a relationship between receipt of family-centered care and the perception of challenge for these families; families receiving familycentered care perceive fewer challenges and feel less unmet need for child health services. Value – Family-centered professionals provide critical voices in the development of policies and programs geared toward improving the health outcomes of children with ASD and their families.

Original languageEnglish (US)
Pages (from-to)247-284
Number of pages38
JournalContemporary Perspectives in Family Research
Volume8A
DOIs
StatePublished - 2014

Bibliographical note

Publisher Copyright:
© 2014 by Emerald Group Publishing Limited.

Keywords

  • Andersen’s behavioral model of health services use
  • Autism
  • Family-centered care
  • National survey of children with special health care needs

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