Exploring patient experiences with prescription medicines to identify unmet patient needs: Implications for research and practice

Suzan N. Kucukarslan, Nancy J.W. Lewis, Leslie A. Shimp, Caroline A. Gaither, Daniel C. Lane, Andrea L. Baumer

Research output: Contribution to journalArticlepeer-review

13 Scopus citations


Background: Pharmacy services are offered to patients, and often, they decline participation. Research is needed to better understand patients' unmet needs when taking prescribed medications. Objective: To identify and characterize patients' unmet needs related to using prescribed medication for chronic conditions. Methods: Focus groups of patients using prescription medication for chronic conditions discussed their experiences with medications, starting from initial diagnosis to ongoing management. Sessions involved 40 patients from 1 Midwestern U.S. state. Major themes were identified using content analysis. Results: Three major themes emerged. First, patients seek information to understand their health condition and treatment rationale. Patients form an illness perception (its consequence, controllability, cause, and duration) that dictates their actions. Second, patients desire to be involved in treatment decisions, and they often feel that decisions are made for them without their understanding of the risk-to-benefit trade-off. Third, patients monitor the impact of treatment decisions to determine if anticipated outcomes are achieved. Conclusion: The results were consistent with Dowell's therapeutic alliance model (TAM) and Leventhal's common sense model (CSM). The TAM can be used to model the consultative services between pharmacists and patients. The impact of the new services (or interventions) can be evaluated using the CSM. Patients expressed a strong desire to be involved in their treatment decisions. The effectiveness of medication therapy management services may be enhanced if pharmacists build on patients' desire to be involved in their treatment decisions and assist them to understand the role of medications and their risks and expected outcomes within the context of the patients' perceptions of illness and desired coping strategies.

Original languageEnglish (US)
Pages (from-to)321-332
Number of pages12
JournalResearch in Social and Administrative Pharmacy
Issue number4
StatePublished - Jul 2012

Bibliographical note

Funding Information:
This research was supported by The Blue Cross Blue Shield of Michigan Research Foundation and The Community Pharmacy Foundation . Study sponsors had no involvement in study design; in the collection, analysis, and interpretation of data; in the writing of the manuscript; or in the decision to submit the manuscript for publication.


  • Illness perception
  • Medication adherence
  • Patient focus group
  • Patient-centered
  • Pharmacy
  • Self-regulation


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