Engaging parent-child dyad and healthcare provider stakeholders in a patient-centered comparative effectiveness study

Briana A. Woods-Jaeger, Chris C. Sexton, Cassidy Branch, Mallory Bolenbaugh, Lisa Roth, Elisabeth A. Stelson, Nikki Braaten, Marizen Ramirez

Research output: Contribution to journalArticlepeer-review

Abstract

Aim: Describe engagement activities in a comparative effectiveness study evaluating two interventions for promoting psychosocial health among youth ages 10-17 who have recently experienced a nonintentional injury. Methods: Institutional, community and patient stakeholders from four children's hospitals were engaged through consultation meetings, individual interviews and a collaborative meeting. Results: 67 engagement activities were conducted across four hospitals. Feedback to improve recruitment, retention and continuous engagement in the study was obtained. Finally, disseminating study interventions to school and healthcare settings, and adding alternative delivery formats were identified as priority next steps. Conclusion: Results highlight diverse methods of engaging patient and professional stakeholders, critical recommendations for improving study engagement and retention, and future directions for this patient-engaged comparative effectiveness research.

Original languageEnglish (US)
Pages (from-to)721-732
Number of pages12
JournalJournal of Comparative Effectiveness Research
Volume8
Issue number9
DOIs
StatePublished - Jul 2019

Bibliographical note

Funding Information:
Research reported in this publication was funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (CER-1306–02918). The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed. No writing assistance was utilized in the production of this manuscript.

Keywords

  • comparative effectiveness research
  • health services research
  • mental health
  • pediatrics
  • stakeholder engagement
  • trial design

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