Empirical analysis of current approaches to incidental findings

Frances P Lawrenz, Suzanne Sobotka

Research output: Contribution to journalArticlepeer-review

25 Scopus citations

Abstract

This paper presents results found through searching publicly available U.S. data sources for information about how to handle incidental fndings (IF) in human subjects research, especially in genetics and genomics research, neuroimaging research, and CT colonography research. We searched the Web sites of 14 federal agencies, 22 professional societies, and 100 universities, as well as used the search engine Google for actual consent forms that had been posted on the Internet. Our analysis of these documents showed that there is very little public guidance available for researchers as to how to deal with incidental fndings. Moreover, the guidance available is not consistent.

Original languageEnglish (US)
Pages (from-to)249-255
Number of pages7
JournalJournal of Law, Medicine and Ethics
Volume36
Issue number2
DOIs
StatePublished - Jun 2008

Fingerprint Dive into the research topics of 'Empirical analysis of current approaches to incidental findings'. Together they form a unique fingerprint.

Cite this