Introduction: The purpose of this study was to evaluate the effect of advanced practice registered nurse (APRN) telehealth care coordination for children with medical complexity (CMC) on family caregiver perceptions of health care. Method: Families with CMC ages 2 to 15 years (. N = 148) were enrolled in a three-armed, 30-month randomized controlled trial to test the effects of adding an APRN telehealth care coordination intervention to an existing specialized medical home for CMC. Satisfaction with health care was measured using items from the Consumer Assessment of Healthcare Providers and Systems survey at baseline and after 1 and 2 years. Results: The intervention was associated with higher ratings on measures of the child's provider, provider communication, overall health care, and care coordination adequacy, compared with control subjects. Higher levels of condition complexity were associated with higher ratings of overall health care in some analyses. Discussion: APRN telehealth care coordination for CMC was effective in improving ratings of caregiver experiences with health care and providers. Additional research with CMC is needed to determine which children benefit most from high-intensity care coordination.
Bibliographical noteFunding Information:
This research was supported in part by National Institute of Nursing Research, National Institutes of Health grant R01 NR010883 .
© 2015 National Association of Pediatric Nurse Practitioners.
Copyright 2018 Elsevier B.V., All rights reserved.
- Care coordination
- Chronic conditions
- Medical complexity