Dermatology Life Quality Index survey in patients with Down syndrome and caregivers

Morgan Dykman, Madison Ernst, Tasya Rakasiwi, Amy Buros Stein, David J. Satin, Kristen E. Holland, Stephanie L. Santoro, Jillian F. Rork

Research output: Contribution to journalArticlepeer-review


Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.

Original languageEnglish (US)
JournalPediatric Dermatology
StateAccepted/In press - 2024

Bibliographical note

Publisher Copyright:
© 2024 Wiley Periodicals LLC.


  • Down syndrome
  • genetic diseases/mechanisms
  • quality of life

PubMed: MeSH publication types

  • Journal Article


Dive into the research topics of 'Dermatology Life Quality Index survey in patients with Down syndrome and caregivers'. Together they form a unique fingerprint.

Cite this