Defining and measuring community engagement and community-engaged research: Clinical and translational science institutional practices

Milton Eder; Eunbyul Evans; Melanie Funes; Hui Hong; Katja Reuter; Syed Ahmed; Karen Calhoun; Giselle Corbie-Smith; Gaurav Dave; Mia Defino; Eileen M Harwood; Anne Kissack; Lawrence C. Kleinman; Nina Wallerstein

doi:10.1353/cpr.2018.0034

Defining and measuring community engagement and community-engaged research: Clinical and translational science institutional practices

Milton Eder, Eunbyul Evans, Melanie Funes, Hui Hong, Katja Reuter, Syed Ahmed, Karen Calhoun, Giselle Corbie-Smith, Gaurav Dave, Mia Defino, Eileen M Harwood, Anne Kissack, Lawrence C. Kleinman, Nina Wallerstein

Research output: Contribution to journal › Article › peer-review

33 Scopus citations

Abstract

Background: The institutions that comprise the Clinical and Translational Science Award (CTSA) consortium and the National Center for Advancing Translational Sciences continue to explore and develop community-engaged research strategies and to study the role of community academic partnerships in advancing the science of community engagement. Objectives: To explore CTSA institutions in relation to an Institute of Medicine recommendation that community engagement occur in all stages of translational research and be defined and evaluated consistently. Methods: A sequential multimethods study starting with an online pilot survey followed by survey respondents and site informant interviews. A revised survey was sent to the community engagement and evaluation leads at each CTSA institution, requesting a single institutional response about the definitions, indicators, and metrics of community engagement and community-engaged research. Results: A plurality of CTSA institutions selected the definition of community engagement from the Principles of Community Engagement. Although claiming unique institutional priorities create barriers to developing shared metrics, responses indicate an overall lack of attention to the development and deployment of metrics to assess community engagement in and contributions to research. Conclusions: Although definitions of community engagement differ among CTSAs, there seem to be more similarities than differences in the indicators and measures tracked and reported on across all definitions, perhaps owing to commonalities among program infrastructures and goals. Metrics will likely need to be specific to translational research stages. The assessment of community engagement within translational science will require increased institutional commitment.

Original language	English (US)
Pages (from-to)	145-156
Number of pages	12
Journal	Progress in Community Health Partnerships: Research, Education, and Action
Volume	12
Issue number	2
DOIs	https://doi.org/10.1353/cpr.2018.0034
State	Published - Jun 1 2018

Bibliographical note

Funding Information:
This study received no direct funding. The authors were provided partial salary support through the following grants: NIH National Center for Advancing Translational Sciences. Grant Numbers: UL1TR000114, UL1TR000130, UL1TR000055, UL1TR000443, UL1TR001111, UL1TR002240, UL1RR029887 and UL1TR000041; NIH National Heart, Lung, and Blood Institute. Grant Number: K24HL105493; Agency for Healthcare Research and Quality. Grant Number: U18HS020518; Native American Research Centers for Health (NARCH V): Grant Numbers: U261HS300293 and U261IHS0036-04-00 (funded by Indian Health Service, National Institute of General Medical Sciences, Health Resources Services Administration, National Cancer Institute, National Center for Research Resources, National Institute of Drug Abuse, National Institute of Minority Health and Health Disparities, and Office of Behavioral Social Sciences Research).The authors thank all the key site informants for responding to the surveys. The authors thank Meryl Sufian, Division of Clinical Innovation, National Center for Advancing Translational Sciences, National Institutes of Health, and Adina Black (Research Assistant), North Carolina Translational and Clinical Sciences Institute, UNC Chapel Hill, for their encouragement and contributions to this project.

Funding Information:
(1) Department of Family Medicine and Community Health; (2) Clinical Translational Science Institute, Office of Community Engagement to Advance Research and Community Health, University of Minnesota; (3) Evaluation and Improvement, Southern California Clinical and Translational Science Institute, University of Southern California; (4) Southern California Clinical and Translational Science Institute, University of Southern California; (5) University of Southern California Chan Division of Occupational Science and Occupational Therapy; (6) Institute for Health Promotion and Disease Prevention Research, Department of Preventive Medicine, Keck School of Medicine of USC, University of Southern California, Los Angeles, California, United States; (7) Southern California Clinical and Translational Science Institute, Keck School of Medicine of USC, University of Southern California, Los Angeles, California, United States; (8) Community Engagement Key Function, Clinical and Translational Science Institute of Southeast Wisconsin, Medical College of Wisconsin; (9) Department of Family and Community Medicine, Medical College of Wisconsin; (10) Institute for Health and Society, Medical College of Wisconsin; (11) Community Engagement Core, Medical College of Wisconsin; (12) Connect Detroit; (13) Michigan Institute for Clinical and Health Research, University of Michigan; (14) Department of Social Medicine and Department of Medicine, University of North Carolina at Chapel Hill; (15) Center for Health Equity Research, University of North Carolina at Chapel Hill; (16) Community Academic Resources for Engaged Scholarship Services, North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill; (17) School of Medicine, University of North Carolina at Chapel Hill; (18) Evaluation, North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill; (19) DeFino Consulting, LLC; (20) Division of Epidemiology and Community Health, Clinical and Translational Science Institute, University of Minnesota; (21) Aurora Research Institute, Aurora Health Care, Inc.; (22) Professor and Vice Chair for Research and Education, Department of Population Health Science & Policy and Professor, Department of Pediatrics , Icahn School of Medicine at Mount Sinai; (23) Research and Education, Department of Population Health Science & Policy, (24) Co-Director, Centers for Community Academic Research Partnerships, Mount Sinai Institutes for Clinical and Translational Sciences, Icahn School of Medicine at Mount Sinai; (25) Public Health Program, College of Population Health; (26) Center for Participatory Research

Publisher Copyright:
© 2018 Johns Hopkins University Press.

Keywords

Clinical and translational science
Community engagement
Community health partnerships
Community-based participatory research
Metrics and outcomes
Outcomes research evaluation

Publisher link

10.1353/cpr.2018.0034

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Eder, M., Evans, E., Funes, M., Hong, H., Reuter, K., Ahmed, S., Calhoun, K., Corbie-Smith, G., Dave, G., Defino, M., Harwood, E. M., Kissack, A., Kleinman, L. C., & Wallerstein, N. (2018). Defining and measuring community engagement and community-engaged research: Clinical and translational science institutional practices. Progress in Community Health Partnerships: Research, Education, and Action, 12(2), 145-156. https://doi.org/10.1353/cpr.2018.0034

Defining and measuring community engagement and community-engaged research: Clinical and translational science institutional practices. / Eder, Milton; Evans, Eunbyul; Funes, Melanie et al.
In: Progress in Community Health Partnerships: Research, Education, and Action, Vol. 12, No. 2, 01.06.2018, p. 145-156.

Research output: Contribution to journal › Article › peer-review

Eder, M, Evans, E, Funes, M, Hong, H, Reuter, K, Ahmed, S, Calhoun, K, Corbie-Smith, G, Dave, G, Defino, M, Harwood, EM, Kissack, A, Kleinman, LC & Wallerstein, N 2018, 'Defining and measuring community engagement and community-engaged research: Clinical and translational science institutional practices', Progress in Community Health Partnerships: Research, Education, and Action, vol. 12, no. 2, pp. 145-156. https://doi.org/10.1353/cpr.2018.0034

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abstract = "Background: The institutions that comprise the Clinical and Translational Science Award (CTSA) consortium and the National Center for Advancing Translational Sciences continue to explore and develop community-engaged research strategies and to study the role of community academic partnerships in advancing the science of community engagement. Objectives: To explore CTSA institutions in relation to an Institute of Medicine recommendation that community engagement occur in all stages of translational research and be defined and evaluated consistently. Methods: A sequential multimethods study starting with an online pilot survey followed by survey respondents and site informant interviews. A revised survey was sent to the community engagement and evaluation leads at each CTSA institution, requesting a single institutional response about the definitions, indicators, and metrics of community engagement and community-engaged research. Results: A plurality of CTSA institutions selected the definition of community engagement from the Principles of Community Engagement. Although claiming unique institutional priorities create barriers to developing shared metrics, responses indicate an overall lack of attention to the development and deployment of metrics to assess community engagement in and contributions to research. Conclusions: Although definitions of community engagement differ among CTSAs, there seem to be more similarities than differences in the indicators and measures tracked and reported on across all definitions, perhaps owing to commonalities among program infrastructures and goals. Metrics will likely need to be specific to translational research stages. The assessment of community engagement within translational science will require increased institutional commitment.",

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note = "Funding Information: This study received no direct funding. The authors were provided partial salary support through the following grants: NIH National Center for Advancing Translational Sciences. Grant Numbers: UL1TR000114, UL1TR000130, UL1TR000055, UL1TR000443, UL1TR001111, UL1TR002240, UL1RR029887 and UL1TR000041; NIH National Heart, Lung, and Blood Institute. Grant Number: K24HL105493; Agency for Healthcare Research and Quality. Grant Number: U18HS020518; Native American Research Centers for Health (NARCH V): Grant Numbers: U261HS300293 and U261IHS0036-04-00 (funded by Indian Health Service, National Institute of General Medical Sciences, Health Resources Services Administration, National Cancer Institute, National Center for Research Resources, National Institute of Drug Abuse, National Institute of Minority Health and Health Disparities, and Office of Behavioral Social Sciences Research).The authors thank all the key site informants for responding to the surveys. The authors thank Meryl Sufian, Division of Clinical Innovation, National Center for Advancing Translational Sciences, National Institutes of Health, and Adina Black (Research Assistant), North Carolina Translational and Clinical Sciences Institute, UNC Chapel Hill, for their encouragement and contributions to this project. Funding Information: (1) Department of Family Medicine and Community Health; (2) Clinical Translational Science Institute, Office of Community Engagement to Advance Research and Community Health, University of Minnesota; (3) Evaluation and Improvement, Southern California Clinical and Translational Science Institute, University of Southern California; (4) Southern California Clinical and Translational Science Institute, University of Southern California; (5) University of Southern California Chan Division of Occupational Science and Occupational Therapy; (6) Institute for Health Promotion and Disease Prevention Research, Department of Preventive Medicine, Keck School of Medicine of USC, University of Southern California, Los Angeles, California, United States; (7) Southern California Clinical and Translational Science Institute, Keck School of Medicine of USC, University of Southern California, Los Angeles, California, United States; (8) Community Engagement Key Function, Clinical and Translational Science Institute of Southeast Wisconsin, Medical College of Wisconsin; (9) Department of Family and Community Medicine, Medical College of Wisconsin; (10) Institute for Health and Society, Medical College of Wisconsin; (11) Community Engagement Core, Medical College of Wisconsin; (12) Connect Detroit; (13) Michigan Institute for Clinical and Health Research, University of Michigan; (14) Department of Social Medicine and Department of Medicine, University of North Carolina at Chapel Hill; (15) Center for Health Equity Research, University of North Carolina at Chapel Hill; (16) Community Academic Resources for Engaged Scholarship Services, North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill; (17) School of Medicine, University of North Carolina at Chapel Hill; (18) Evaluation, North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill; (19) DeFino Consulting, LLC; (20) Division of Epidemiology and Community Health, Clinical and Translational Science Institute, University of Minnesota; (21) Aurora Research Institute, Aurora Health Care, Inc.; (22) Professor and Vice Chair for Research and Education, Department of Population Health Science & Policy and Professor, Department of Pediatrics , Icahn School of Medicine at Mount Sinai; (23) Research and Education, Department of Population Health Science & Policy, (24) Co-Director, Centers for Community Academic Research Partnerships, Mount Sinai Institutes for Clinical and Translational Sciences, Icahn School of Medicine at Mount Sinai; (25) Public Health Program, College of Population Health; (26) Center for Participatory Research Publisher Copyright: {\textcopyright} 2018 Johns Hopkins University Press.",

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doi = "10.1353/cpr.2018.0034",

language = "English (US)",

volume = "12",

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T1 - Defining and measuring community engagement and community-engaged research

T2 - Clinical and translational science institutional practices

AU - Eder, Milton

AU - Evans, Eunbyul

AU - Funes, Melanie

AU - Hong, Hui

AU - Reuter, Katja

AU - Ahmed, Syed

AU - Calhoun, Karen

AU - Corbie-Smith, Giselle

AU - Dave, Gaurav

AU - Defino, Mia

AU - Harwood, Eileen M

AU - Kissack, Anne

AU - Kleinman, Lawrence C.

AU - Wallerstein, Nina

N1 - Funding Information: This study received no direct funding. The authors were provided partial salary support through the following grants: NIH National Center for Advancing Translational Sciences. Grant Numbers: UL1TR000114, UL1TR000130, UL1TR000055, UL1TR000443, UL1TR001111, UL1TR002240, UL1RR029887 and UL1TR000041; NIH National Heart, Lung, and Blood Institute. Grant Number: K24HL105493; Agency for Healthcare Research and Quality. Grant Number: U18HS020518; Native American Research Centers for Health (NARCH V): Grant Numbers: U261HS300293 and U261IHS0036-04-00 (funded by Indian Health Service, National Institute of General Medical Sciences, Health Resources Services Administration, National Cancer Institute, National Center for Research Resources, National Institute of Drug Abuse, National Institute of Minority Health and Health Disparities, and Office of Behavioral Social Sciences Research).The authors thank all the key site informants for responding to the surveys. The authors thank Meryl Sufian, Division of Clinical Innovation, National Center for Advancing Translational Sciences, National Institutes of Health, and Adina Black (Research Assistant), North Carolina Translational and Clinical Sciences Institute, UNC Chapel Hill, for their encouragement and contributions to this project. Funding Information: (1) Department of Family Medicine and Community Health; (2) Clinical Translational Science Institute, Office of Community Engagement to Advance Research and Community Health, University of Minnesota; (3) Evaluation and Improvement, Southern California Clinical and Translational Science Institute, University of Southern California; (4) Southern California Clinical and Translational Science Institute, University of Southern California; (5) University of Southern California Chan Division of Occupational Science and Occupational Therapy; (6) Institute for Health Promotion and Disease Prevention Research, Department of Preventive Medicine, Keck School of Medicine of USC, University of Southern California, Los Angeles, California, United States; (7) Southern California Clinical and Translational Science Institute, Keck School of Medicine of USC, University of Southern California, Los Angeles, California, United States; (8) Community Engagement Key Function, Clinical and Translational Science Institute of Southeast Wisconsin, Medical College of Wisconsin; (9) Department of Family and Community Medicine, Medical College of Wisconsin; (10) Institute for Health and Society, Medical College of Wisconsin; (11) Community Engagement Core, Medical College of Wisconsin; (12) Connect Detroit; (13) Michigan Institute for Clinical and Health Research, University of Michigan; (14) Department of Social Medicine and Department of Medicine, University of North Carolina at Chapel Hill; (15) Center for Health Equity Research, University of North Carolina at Chapel Hill; (16) Community Academic Resources for Engaged Scholarship Services, North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill; (17) School of Medicine, University of North Carolina at Chapel Hill; (18) Evaluation, North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill; (19) DeFino Consulting, LLC; (20) Division of Epidemiology and Community Health, Clinical and Translational Science Institute, University of Minnesota; (21) Aurora Research Institute, Aurora Health Care, Inc.; (22) Professor and Vice Chair for Research and Education, Department of Population Health Science & Policy and Professor, Department of Pediatrics , Icahn School of Medicine at Mount Sinai; (23) Research and Education, Department of Population Health Science & Policy, (24) Co-Director, Centers for Community Academic Research Partnerships, Mount Sinai Institutes for Clinical and Translational Sciences, Icahn School of Medicine at Mount Sinai; (25) Public Health Program, College of Population Health; (26) Center for Participatory Research Publisher Copyright: © 2018 Johns Hopkins University Press.

PY - 2018/6/1

Y1 - 2018/6/1

N2 - Background: The institutions that comprise the Clinical and Translational Science Award (CTSA) consortium and the National Center for Advancing Translational Sciences continue to explore and develop community-engaged research strategies and to study the role of community academic partnerships in advancing the science of community engagement. Objectives: To explore CTSA institutions in relation to an Institute of Medicine recommendation that community engagement occur in all stages of translational research and be defined and evaluated consistently. Methods: A sequential multimethods study starting with an online pilot survey followed by survey respondents and site informant interviews. A revised survey was sent to the community engagement and evaluation leads at each CTSA institution, requesting a single institutional response about the definitions, indicators, and metrics of community engagement and community-engaged research. Results: A plurality of CTSA institutions selected the definition of community engagement from the Principles of Community Engagement. Although claiming unique institutional priorities create barriers to developing shared metrics, responses indicate an overall lack of attention to the development and deployment of metrics to assess community engagement in and contributions to research. Conclusions: Although definitions of community engagement differ among CTSAs, there seem to be more similarities than differences in the indicators and measures tracked and reported on across all definitions, perhaps owing to commonalities among program infrastructures and goals. Metrics will likely need to be specific to translational research stages. The assessment of community engagement within translational science will require increased institutional commitment.

AB - Background: The institutions that comprise the Clinical and Translational Science Award (CTSA) consortium and the National Center for Advancing Translational Sciences continue to explore and develop community-engaged research strategies and to study the role of community academic partnerships in advancing the science of community engagement. Objectives: To explore CTSA institutions in relation to an Institute of Medicine recommendation that community engagement occur in all stages of translational research and be defined and evaluated consistently. Methods: A sequential multimethods study starting with an online pilot survey followed by survey respondents and site informant interviews. A revised survey was sent to the community engagement and evaluation leads at each CTSA institution, requesting a single institutional response about the definitions, indicators, and metrics of community engagement and community-engaged research. Results: A plurality of CTSA institutions selected the definition of community engagement from the Principles of Community Engagement. Although claiming unique institutional priorities create barriers to developing shared metrics, responses indicate an overall lack of attention to the development and deployment of metrics to assess community engagement in and contributions to research. Conclusions: Although definitions of community engagement differ among CTSAs, there seem to be more similarities than differences in the indicators and measures tracked and reported on across all definitions, perhaps owing to commonalities among program infrastructures and goals. Metrics will likely need to be specific to translational research stages. The assessment of community engagement within translational science will require increased institutional commitment.

KW - Clinical and translational science

KW - Community engagement

KW - Community health partnerships

KW - Community-based participatory research

KW - Metrics and outcomes

KW - Outcomes research evaluation

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Defining and measuring community engagement and community-engaged research: Clinical and translational science institutional practices

Abstract

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