Coping Among Parents of Children With Special Health Care Needs With and Without a Health Care Home

Angela Drummond, Wendy S. Looman, Abby Phillips

Research output: Contribution to journalArticlepeer-review

20 Scopus citations

Abstract

Introduction: Having a health care home has been shown to be associated with positive health outcomes for children with special health care needs (CSHCN), but its relationship to parental coping has not been established. The purpose of this study was to explore the health care home as a process of care related to parental coping with day-to-day demands of raising a CSHCN. Method: Data are from a sample of 18,352 CSHCN in the 2007 National Survey of Children's Health. Using the Behavioral Model of Health Services Use as a framework, this secondary analysis explored relationships between child and household factors and parental coping among CSHCN with and without a health care home. Results: CSHCN in a health care home were more likely to have parents who were coping well. Parents who received sufficient care coordination were more satisfied with provider communication, and those who reported that care was family-centered reported better coping. Discussion: Results suggest that the health care home represents a process of care that may help families manage the daily demands of caring for CSHCN through family-centered care, provider-to-provider communication, and provision of care coordination.

Original languageEnglish (US)
Pages (from-to)266-275
Number of pages10
JournalJournal of Pediatric Health Care
Volume26
Issue number4
DOIs
StatePublished - Jul 2012

Bibliographical note

Funding Information:
Data used for this study are publicly available through the National Center for Health Statistics (NCHS); the analyses, interpretations, and conclusions presented in this manuscript are those of the authors and not necessarily of NCHS, which is responsible only for the initial data. The National Survey of Children’s Health, 2007, was sponsored by the Maternal Child Health Bureau of the Health Resources and Services Administration and Office of the Assistant Secretary for Planning and Evaluation of the Department of Health & Human Services.

Funding Information:
This research was supported in part by the Center for Children with Special Health Care Needs at the University of Minnesota, grant T80-MC00010 from the Maternal and Child Health Bureau, Health Resources and Services Administration, Department of Health & Human Services .

Keywords

  • Family-centered care
  • Health care home
  • Special health care needs

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