Community participation and staying home if you want: US adults with intellectual and developmental disabilities

Roger J. Stancliffe; Sandra L. Pettingell; Julie Bershadsky; James Houseworth; Renáta Tichá

doi:10.1111/jar.13014

Community participation and staying home if you want: US adults with intellectual and developmental disabilities

Roger J. Stancliffe, Sandra L. Pettingell, Julie Bershadsky, James Houseworth, Renáta Tichá

Institute on Community Integration

Research output: Contribution to journal › Article › peer-review

2 Scopus citations

Abstract

Background: Requiring adults with intellectual and developmental disabilities to go on community outings with co-residents and staff is contrary to community-living policy's focus on person centredness and choice of activities/companions. Method: We analysed 2018-19 National Core Indicators data from 36 US states concerning 7968 adults living in staffed, non-family, multi-client settings. The focus outcome was being able to stay home if you want when others in your home go out. Results: The 42.0% of participants who could stay home were more likely to go out with friends, family or alone, and less likely to go out with staff. Those who could stay home participated in a similar variety of community activities and went out more often to shop or for errands. Conclusions: Individuals who could stay home likely had more choice about where, when and with whom they went out. Strategies for greater person-centredness are proposed.

Original language	English (US)
Pages (from-to)	1199-1207
Number of pages	9
Journal	Journal of Applied Research in Intellectual Disabilities
Volume	35
Issue number	5
DOIs	https://doi.org/10.1111/jar.13014
State	Published - Sep 2022

Bibliographical note

Funding Information:
Development of this article was supported by Grant #90RTCP0003 to the Research and Training Center for Community Living from the National Institute on Disability Independent Living and Rehabilitation Research, U.S. Department of Health and Human Services. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not therefore necessarily represent official NIDILRR policy. The authors thank the National Association of State Directors of Developmental Disabilities Services (NASDDDS)and the Human Services Research Institute (HSRI) for granting access to the NCI‐IPS 2018–19 data.

Publisher Copyright:
© 2022 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.

Keywords

block treatment
community participation
disabilities
intellectual and developmental
living arrangements
staying home alone

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1111/jar.13014

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abstract = "Background: Requiring adults with intellectual and developmental disabilities to go on community outings with co-residents and staff is contrary to community-living policy's focus on person centredness and choice of activities/companions. Method: We analysed 2018-19 National Core Indicators data from 36 US states concerning 7968 adults living in staffed, non-family, multi-client settings. The focus outcome was being able to stay home if you want when others in your home go out. Results: The 42.0% of participants who could stay home were more likely to go out with friends, family or alone, and less likely to go out with staff. Those who could stay home participated in a similar variety of community activities and went out more often to shop or for errands. Conclusions: Individuals who could stay home likely had more choice about where, when and with whom they went out. Strategies for greater person-centredness are proposed.",

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note = "Funding Information: Development of this article was supported by Grant #90RTCP0003 to the Research and Training Center for Community Living from the National Institute on Disability Independent Living and Rehabilitation Research, U.S. Department of Health and Human Services. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not therefore necessarily represent official NIDILRR policy. The authors thank the National Association of State Directors of Developmental Disabilities Services (NASDDDS)and the Human Services Research Institute (HSRI) for granting access to the NCI‐IPS 2018–19 data. Publisher Copyright: {\textcopyright} 2022 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.",

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AU - Tichá, Renáta

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N2 - Background: Requiring adults with intellectual and developmental disabilities to go on community outings with co-residents and staff is contrary to community-living policy's focus on person centredness and choice of activities/companions. Method: We analysed 2018-19 National Core Indicators data from 36 US states concerning 7968 adults living in staffed, non-family, multi-client settings. The focus outcome was being able to stay home if you want when others in your home go out. Results: The 42.0% of participants who could stay home were more likely to go out with friends, family or alone, and less likely to go out with staff. Those who could stay home participated in a similar variety of community activities and went out more often to shop or for errands. Conclusions: Individuals who could stay home likely had more choice about where, when and with whom they went out. Strategies for greater person-centredness are proposed.

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Community participation and staying home if you want: US adults with intellectual and developmental disabilities

Abstract

Bibliographical note

Keywords

UN SDGs

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