Children with chronic conditions: Perspectives on condition management

Barbara L. Beacham, Janet A. Deatrick

Research output: Contribution to journalArticlepeer-review

23 Scopus citations

Abstract

This qualitative study described children's (8-13 years old) perspectives of their chronic health conditions (e.g., asthma, diabetes, cystic fibrosis): how they perceived their condition, its management, and its implications for their future. The study used the family management style framework (FMSF) to examine child perspectives on the joint venture of condition management between the child and family. Children within this age group viewed condition management in ways similar to their parents and have developed their own routines around condition management. Future studies of this phenomenon comparing child and parent perspectives would further our understanding of the influence of family management.

Original languageEnglish (US)
Pages (from-to)25-35
Number of pages11
JournalJournal of pediatric nursing
Volume30
Issue number1
DOIs
StatePublished - Jan 1 2015

Bibliographical note

Funding Information:
The first author received financial support from the National Institute of Nursing Research, National Institutes of Health (T32NR007066; T32NR007100; F31NR011524; R01NR011589) and Sigma Theta Tau, Xi Chapter.

Publisher Copyright:
© 2015 Elsevier Inc.

Keywords

  • Childhood
  • Chronic health conditions
  • Condition management
  • Family
  • Long-term conditions
  • Management
  • School-aged children

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